Those who do not live with chronic pain will never understand what it's like to make room for pain, to adjust your life to accommodate it, to get used to it. Just because we may seem better, or seems as though things hurt less (even to ourselves) doesn't mean that they do. We learn to adjust our … [Read more...]
My experience with chronic illnesses covers several different illness.
I hope that much of what I share on this blog can be helpful to anyone living with (or without) any chronic illness. However, my experience and my posts tend to be geared towards fibromyalgia, endometriosis, migraines, and IBS and my experience with those illnesses.
In addition to sharing my personal experience, I also try to share medical studies and general information pertaining to living with these specific illnesses.
Check out the posts below for information on the variety of chronic illnesses that I cover here, including:
Fibro Fog is otherwise known as "mental fog" or "brain fog" since it is not confined strictly to Fibromyalgia. It is common to almost every chronic condition. It comes in a variety of forms, but the key symptom is that your memory isn't working like it should, and your focus and attention are … [Read more...]
Touch is such a strange thing with Fibromyalgia. Long before I was diagnosed with Fibromyalgia I had strange issues with touch. I couldn't stand to have someone sitting too close to me. I'd feel the pressure from them just being there, and sometimes even from across the room. Clothes felt … [Read more...]
Facebook seems to have everything these days. Facebook groups have largely replaced online forums as a place to go to get questions answered about most any topic. But, not all Facebook groups are created equally, especially when it comes to finding support groups. For years, I largely avoided the … [Read more...]
Fibromyalgia and Forgiveness You may not think that forgiveness (or holding a grudge) would play a role in fibromyalgia, but as with all negative emotions it can play a huge role in the symptoms you experience. Holding a grudge is the opposite of forgiveness. Along with that grudge comes the … [Read more...]
I am really sensitive to light, especially certain types of light...ok, never mind... all types of light. While living in my house (before I sold it), I struggled to find a way to light my living room that didn't aggravate that light sensitivity and set off migraines. Moving into an RV … [Read more...]
Someone has it worse than you. How many times have you heard those words? Or, even said them about yourself. I shouldn't complain because someone has it worse than me. It's not that bad, there are so many others suffering worse. When someone else tells you that others have it worse it is hurtful … [Read more...]
Living with chronic illness means grieving a life lost, a life we'd hoped to live, a life we'd planned to live. As we are faced with chronic illness, and throughout our time in it, we continue that grieving process, stepping through the 5 Stages of Grief. Most of us are familiar with the 5 stages … [Read more...]
What's the difference in sympathy and empathy? Only someone who shares our experience can really be empathetic, because no one really "gets" chronic pain until they get it! To be empathetic they don't' have to be in the hole with us, but they do have to have been in the hole at some point. Those … [Read more...]
The Importance of Stretching for Fibromyalgia I didn't understand the importance of stretching for fibromyalgia in the beginning. Like most patients newly diagnosed with fibromyalgia my doctor had told me I needed to exercise. He'd also prescribed physical therapy. However, also like most … [Read more...]