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You are here: Home / Conditions / Fibromyalgia / An Eye Doctor talks about Fibromyalgia and Eye Health

An Eye Doctor talks about Fibromyalgia and Eye Health

Last Updated: February 10, 2017

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

 

Fibromyalgia and Eye Health

My optometrist is amazing. Not only is she funny and sweet and always walks into the room with a smile, she’s just a damn good doctor.

I knew she was a great doctor the day she said to me “I have to treat my Fibromyalgia patients more aggressively….” That was the day that I knew she understood.

Today I’ve asked her to share a few thoughts on Fibromyalgia and eye health.

Fibromyalgia and eye health

 

Years ago you made a comment to me about how you have to treat Fibro patients more aggressively than other patients. What differences do you see between the two? And in what ways do you treat the Fibro patients differently? 

In my experience, patients with chronic pain, longstanding dry eye, and/or neurological pain are more likely to have sought  treatment for their problem and were less successful with previous treatment when I see them.

I know they are frustrated, angry and often defensive about their symptoms. They may be annoyed with their doctors and by the past treatments that were less than successful. 

For these reasons, I tend to be more aggressive with my treatment plans to reduce the frustration and try to get things off to a solid start.

 

Related: Study sheds light on fibromyalgia as nerve disorder

 

Do you have any thoughts on why some doctors are not accepting of Fibromyalgia? and/or they don’t see it as something that they have to treat differently?

Fibromyalgia and chronic pain are difficult to diagnose and treat. It often takes “to long” to obtain the diagnosis, and treatment often takes time to take effect. We have no pill, shot or surgery to help these patients quickly.

Patients are frustrated and often depressed, and it makes sense that doctors feel frustrated and sad as well. It is  a diagnosis of exclusion, one that requires other problems be ruled out, like autoimmune or anti-inflammatory conditions.

Fibromyalgia is tough to diagnose and treat.

Doctors like making patients better. That is what we train to do.

We do not receive training on how to counsel these patients in most cases. In some cases, these patients require more time and more office visits.

Given the current state of insurance reimbursement and governmental requirements, this  may be difficult for doctors to accommodate.

Doctors like making patients better, it's what they are trained to do. Share on X

What can patients do to create a good relationship with their doctor? What should they avoid doing?

I appreciate patients that present with a list of goals for the visit. It makes communication more efficient for everyone. Following treatment instructions is key.

I personally become frustrated with patients who present with a list of complaints but then do not take the recommended medications or follow-up as requested, and then then return saying they are not better.

While it is tempting to research your symptoms or illness on the internet, patients who think they know more than the doctor  make a bad impression.

This makes me crazy because I have to spend so much time arguing with the internet instead of examining and planning treatment.

I do encourage discussion of various treatment options when the patient presents them to me saying, “I read about this treatment. Would this help me?”

Related: Why are doctors reluctant to treat fibromyalgia patients?

 

It's OK to research potential treatments online, just be careful how you present them to the Dr. Share on X

Do you see any connections between Fibromyalgia and eye problems? If so, what types? 

The most common thing I see is ocular surface disease (OSD), not because it is associated with Fibro but because it is so common in my practice. It is essentially inflammation of the eye, and causes redness, pain and eye fatigue. I do not see more retinal or optic nerve disorders with fibro, thankfully.

 

Have you found any treatments to be more beneficial than others to those with Fibromyalgia or other auto-immune disorders?

Patients with these disorders suffer from chronic pain and inflammation, which may be associated with OSD. I use my typical treatments but I will lean more towards treatments that address inflammation such as steroids more often.

 

Related: The fibromyalgia treatments that have helped me most

What can we do to improve eye health?

Reducing near tasks using LEDs (cellphone, tablet, & computer use)  to reduce OSD. Use blue light blockers when you must use devices. Use artificial tears when eyes are red and tired, and keep your glasses updated. Regular visits to your eye care practitioner (OD or MD, as preferred) are important.

 

Related: Light sensitivity, fibromyalgia, & migraines

You highly suggest fish oil, is there such a thing as too much fish oil? 

I just did a blog on this topic!  The FDA says that you should not go over 3000mg (3g) of fish oil per day unless directed by a physician due to increased risk of bleeding.

 

 Is there any advice or anything that you’d like to tell my readers? 

Keep an open mind and maintain a healthy lifestyle. Exercise if you can. Diet choices matter. I do not support eating white sugar, enriched white rice, or bread in patients with Fibromyalgia or chronic pain issues. It increases inflammation.

I personally have tried both eastern and western medicine when I have had health issues that I did not feel were being addresses by traditional western medicine and it worked for me.

 

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Now you can see why I love this doctor. It’s not often (at least in my area) that you find a doctor who is open minded about things like Fibromyalgia or even the use of alternative medicines. I’ve learned a lot from her. You can follow her posts at Optometry Times.

Related: 

  • Study sheds light on Fibromyalgia as a nerve disorder
  • Light sensitivity, fibromyalgia, & migraines
  • 6 Tips for dealing with light sensitivity

4 Comments Filed Under: Fibromyalgia, Symptoms, Treatment Tagged With: chronic pain, dry eyes, eye pain, sensitivities

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. ReDina says

    January 25, 2019 at 9:14 pm

    Hi Ms Julie, I have fibromyalgia too. Biggest problem is sleeping and now my eyes have a rash. Do you know of any topical rashes around the eyes? Is it bc of fibromyalgia? Any help would be greatly appreciated. Sincerely, ReDina

    Reply
    • Julie says

      January 28, 2019 at 1:09 pm

      I’ve not heard of anything like this. I’d definitely suggest getting it checked out if you’ve not already.

      Reply
  2. KRISTINA WHITEHEAD` says

    February 24, 2017 at 2:44 pm

    I need help finding an eye doctor who understands fibro.

    Reply
    • Julie says

      February 26, 2017 at 1:43 pm

      Wish I could help. All I know is I got lucky.

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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