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You are here: Home / Coping / Solving the Fibromyalgia Puzzle

Solving the Fibromyalgia Puzzle

Last Updated: April 19, 2015

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

Have you ever thought about fibromyalgia as a puzzle to solve? Often we think of fibromyalgia as one big thing and as a result we look for one big solid answer, But perhaps the answer is really more of a puzzle with many pieces that need to be fit together. That’s the thought that my friend Donna shared:

I see fibromyalgia as being a puzzle. When you are suffering badly from the symptoms of fibromyalgia, your puzzle has broken apart into various pieces. Sometimes it is hard to know what these pieces are. Sometimes you know what the pieces are but you don’t quite know how to fit them together.- FibroGeek

I started thinking about the pieces of my fibromyalgia puzzle, and what it’s taken for me to put that puzzle together. As Donna pointed out in her post, there’s so much more to dealing with fibro than just one thing, yet it’s so easy for us to blame just one thing when things slip off track.

A flare pops up and we are quick to say that whatever treatment that’s been working is no longer working, but there’s so much more to it than that, and so many facets to the fibromyalgia puzzle. I can think of six pieces that make up my puzzle, I’m sure there are probably a few more that just aren’t coming to mind.

  • Puzzle Piece #1 : Stress – Stress should be the first puzzle piece anyone with fibromyalgia looks at, and yet it’s typically the last. I typically find that when symptoms begin to flare again I can usually find that my stress levels have also increased for some reason. Stress and fibromyalgia have a circular relationship; not only does stress increase fibro symptoms, but when our symptoms increase stress goes up as a result. I’ve learned to control stress through meditation, exercise, focusing on the positive, and forgiveness.

 

  • Puzzle Piece #2: Diet – Early on I purposely avoided even looking at this piece of the puzzle, deciding instead that it must belong to someone else’s puzzle. When I finally took the time to look at at diet I realized that it did fit my puzzle and not only did it fit but that it made up a huge part of the picture. Diet can also play a part in stress, as eating a poor diet adds physical stress on the body and causes it to work harder.

 

  • Puzzle Piece #3: Supplements – When it comes to supplements it seems like there are a number of pieces that could fit in my puzzle, and a number of different ways that they could all fit together. I’ve found a number of supplements that I know are important to making sure that I feel the best that I can, but I also continue to learn about others that I feel I should try. Sometimes I try them and rule them out quickly, other times I try one and find I need to keep it in m routine for a while, or for every.

 

  • Puzzle Piece #4: Pharmaceuticals – Pharmaceuticals play only a small role in my puzzle, but at one time they made up a big section. Over time, I’ve found that by managing the other puzzle pieces better I need pharmaceuticals less.

 

  • Puzzle Piece #5: Education – Since day one I’ve felt that education needed to make up part of my puzzle. While doctors go to med school and know a lot about the body and medicine as a whole, they do not know my body or my specific symptoms as well as I do, nor will they ever. It’s important for me to stay up to date on new research and new treatments, so that I can have educated discussions with my doctors, and so that I can present them with info they may not even be aware of. Most doctors see patients with many different disorders and diseases, even a specialist treats many different issues. They can not be up-to-the-minute on every single illness they treat. I have a much better chance at that.

 

  • Puzzle Piece #6: Support – The support of my family and friends is a huge piece of my puzzle. I don’t know where I’d be without my family and all of my friends (those I know personally, and those I’ve met online). Having someone to turn to, to help me through a problem, to hug me, to just say “I understand” is priceless. My puzzle would never be complete with each person that is a part of my life.

I’m sure that in the years to come I will find new pieces and figure out how they fit in. What pieces have you found? What steps have you made towards solving your own chronic illness puzzle?

Related Posts: 

  • The Importance of Fibromyalgia Support Groups
  • The fibromyalgia treatments that have helped me most
  • 6 steps for coping with stress and improving your Fibromyalgia symptoms

2 Comments Filed Under: Coping, Diet and Nutrition, Fibromyalgia, inspiration, Tips and Tricks, Treatment Tagged With: diet, sunday inspiration

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Donna says

    April 19, 2015 at 7:32 am

    Great post Julie! I think the difficulty with the fibro puzzle is that things can change or come up unexpectedly. Just this week I’ve learned the importance of being open to new ideas. I’ve been struggling with fatigue and feeling really unwell, after my setback when I tired to return to work. So I reached out to ask for help. I had a couple of suggestions for supplements to try. I am waiting on one arriving (licorice, which I’ve to take for 6 weeks) but have already started taking gingseng and what a difference I’ve felt in 3 days! I think the puzzle pieces are all very similar for each of us, but how we go about piecing them together can be so individual.

    Reply
    • Julie says

      April 19, 2015 at 2:17 pm

      All very true and good points. Glad the newest supplement is really helping. Ginsing has a lot of great benefits.

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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