Inspired Living with Chronic Illness
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*BTW, just a heads up that the post below may have affiliate links (some of my posts do).
Just a heads up that the post below may have affiliate links.
Spoonie. Fibro Warrior. E-health advocate.
Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.
Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.
"I have chronic illness, it doesn't have me."
Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.
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So far I haven’t found people like this who really want to help, so I haven’t really had the experience of pushing it away. I always wonder where people find friends like that. Everyone I’ve had actually does keep score and it was so exhausting having to explain why I needed this or that and why they had to do more than I could; they really didn’t understand and resented it. It was a no-won situation and it always ended badly. I came to believe after many years that most people are like that and that friends like you describe only exist in books or movies; not in real life. Nowadays although it would be nice to have real live friends I don’t have the energy to deal with the drama that comes with it and I don’t think I could deal with it emotionally. I’m pretty beaten down by life at this point.
Pippit, I’m really sorry to read this. There are real friends out there. I’m not saying that every one around us is this way (obviously, there are plenty who are in life for themselves). But, there are those who will help if we give them the chance. I understand, too, how difficult it is to expend the energy to make new friends at this point. The older we get the harder making friends gets, then add in chronic illness and low (or no) energy and often seems impossible. But, remember, friends are not just those people who surround you in person, often the best friends are those we never meet face to face. I know I’ve made some amazing friends here online, who have helped me in so many ways – when I’m willing to ask (and sometimes even when I don’t).
thank you for today’s post. Not only did I read it twice (to help me remember!) but I’ve been reading your “high lighted” links on your post as well. I’ve been reading & reading & taking it all in – I kept getting tears in my eyes from the feeling of connection & understanding & relating. Perhaps today is a better brain day because I usually can not finish reading our posts due to my thick brain fog. It can be troublesome… Six years ago I lost my job due to my chronic illness & since then it seems like I continue to suffer from losses in every area of my life – like slowly pulling a band-aid off… One thing I do know is that this whole experience with health issues has been a great life lesson each & every day… Thank you for your efforts with your frequent posts. I don’t see how you do it & continue to have the clarity of mind. Thank you for inspiring me. I’ve been kinda sad today & that’s ok… julie v.
During my worst days of Fibro I can’t think much at all. The first couple of years I did good to listen to an audio book, so I do understand that reading can be really difficult at times. I’m glad you are having good days and I’m really glad that I can help at all. I know how hard it is when you feel alone, and no one around you really understands what you are going through. But, you aren’t alone. Reach out when you can and/or need to.