How I Reclaimed My Life from Chronic Pain Life is a constant state of reclaiming. At least my life is. For every loss I faced, I must then reclaim a life I want. Whatever the struggle, I have to come back and reclaim the life I have chosen. What other choice is there? Giving up? That's no choice … [Read more...]
My Life
These posts discuss various aspects of my life, whether it's my latest symptom, a current event, or an upcoming surgery.
Counting My Spoons – Ask Me Anything
Every so often I put out a call on Facebook to Ask Me Anything. Below are some of the questions and my answers. Do you live in a state that has legalized medical marijuana and if so have you tried it? Unfortunately, I do not live in a state that has legalized medical (or any) marijuana. … [Read more...]
My Story of Recovery from Fibromyalgia
It's been a decade since I became ill and was diagnosed with fibromyalgia. I spent the first two years barely existing. Getting out of bed was a struggle. Thankfully, I did find some answers that helped me recover and return to a mostly normal life. My story of recovery from fibromyalgia Don't get … [Read more...]
Balancing full-time RV travel life with chronic illness
Just about a month ago my guy and I traded in normal life for a life of full-time travel. We've learned a lot in those few weeks, and we're still learning. I'm relearning how to pace myself and we're both learning how to balance work and travel life with chronic illness. I've learned that … [Read more...]
Coming Out of the Chronic Illness Closet
Being open about your chronic illness can often be as difficult as coming out of the closet about your sexuality. In both cases, you rightfully worry that you will be judged, that you won't be accepted, and that opportunities may be taken away from you. Chronic Mom shared a great post about … [Read more...]
How living in an RV with a chronic illness is simplifying my life
The last couple of years have been all about simplifying life. So, why would I seemingly make things difficult by choosing to live in an RV with chronic illness? How does life in an RV, when you are chronically ill, equate to a more simple life? How does any life in an RV make things more … [Read more...]
My experience with ACA subsidized insurance (after two years)
My biggest concern when I got divorced in 2017 was how I would handle health insurance. Living with chronic illness I was fairly sure my only option would be going through the exchange at healthcare.gov. But, I'd heard horror stories about how expensive it still could be, and about the limited … [Read more...]
Overlap Between Intercranial Hypertension and Fibromyalgia
A couple of months ago I began experiencing some severe exertion headaches that were definitely not migraines. A month of tests resulted in the usual outcome - doctors having no idea what's going on and dismissing me. This year was a busy one. I'd been spending the weekends overworking myself, … [Read more...]
Building a Solid Healthcare Team Isn’t Easy
Over the last decade I've really struggled to build a medical team I can trust and I think I have finally almost managed it... just in time to barely need most of them. My greatest struggle has been finding a good general practitioner. For about two years I didn't have one at all and strictly … [Read more...]
2017: A year in review
Happy New Year! 2017 has been a very eventful year for me. In February I had my third surgery for Endometriosis. The recovery went super easy thanks to a combination of Oska and a CBD pain patch. I recovered so well that I was able to travel just a couple of weeks after surgery. Speaking of … [Read more...]
