Counting My Spoons

Inspired Living with Chronic Illness

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My experience with chronic illnesses covers several different illness.

I hope that much of what I share on this blog can be helpful to anyone living with (or without) any chronic illness. However, my experience and my posts tend to be geared towards fibromyalgia, endometriosis, migraines, and IBS and my experience with those illnesses.

In addition to sharing my personal experience, I also try to share medical studies and general information pertaining to living with these specific illnesses.

Check out the posts below for information on the variety of chronic illnesses that I cover here, including:

  • Fibromyalgia
  • Migraine
  • Endometriosis
  • IBS

8 Tips for Dealing with Fibromyalgia

Last Updated: August 20, 2020

7 tips for dealing with fibromyalgia

Over the years, I've had many people ask for my top tips for dealing with Fibromyalgia. These 7 tips are the tips I typically share. They are what has helped me. And, while the specifics will likely vary from individual to individual, the basics are the same and I hope you find these tips helpful … [Read more...]

1 Comment Filed Under: Coping, Fibromyalgia, Tips and Tricks, Treatment Tagged With: acceptance, cbd oil, dealing with doctors, doctors, sleep, supplements, support

Treatment with Memantine for Fibromyalgia

Last Updated: August 19, 2020

Using the Alzheimer's drug Mementine to treat fibromyalgia - does it work?

Memantine for Fibromyalgia Recent studies have been looking at how the drug Mementine, currently used to treat Alzheimer's, may help those with fibromyalgia. Let's take a look at what this drug is, and how it works. Glutamate and Fibromyalgia Things to know: Glutamate is the most … [Read more...]

3 Comments Filed Under: Fibromyalgia, Medical Studies, Medications Tagged With: brain fog

Tips for Pacing When You Have Chronic Illness

Last Updated: August 18, 2020

How to pace yourself when you have chronic illness (image of distressed girl surrounded by clocks) - Counting My Spoons

When you live with chronic illness it seems that everywhere you turn you are told to pace yourself and your activities. But, rarely do they explain what it means or how to do it. Pacing is a concept that gets thrown around a lot in support groups and blogs related to chronic illness. You may … [Read more...]

11 Comments Filed Under: Coping, Fibromyalgia, migraine, Tips and Tricks Tagged With: chronic fatigue, chronic pain, pacing

High Altitude and Fibromyalgia

Last Updated: August 12, 2020

High altitude and fibromyalgia

Could high altitude increase symptoms of fibromyalgia? Our journey across the country in our RV has brought us back to Colorado. I've been here a few times in the past to visit family and once again I'm reminded that this may not be the best place for me.  Our first stop has us near Denver … [Read more...]

27 Comments Filed Under: Fibromyalgia, Symptoms Tagged With: altitude, chronic fatigue, chronic pain

Things to Say to Someone with Chronic Illness

Last Updated: August 12, 2020

10 things you should say to someone with chronic illness

If you love someone with chronic illness, you want to show them you care. There are plenty of lists of things that you shouldn't say, things that aren't helpful to them or to your relationship. But, more important are the things that you should say to someone with chronic illness. These are the … [Read more...]

6 Comments Filed Under: Coping, Extra Spoons, Fibro and Marriage, Fibromyalgia, friendship, relationships Tagged With: chronic illness, communication

Have you let Pain take your Identity?

Last Updated: August 11, 2020

Has pain stolen your identity?

How much of your identity revolves around your illness? Around your pain? How do you describe yourself? If I asked you to describe yourself to me right now, what would you say? Would you include your pain and illness in that description? When you live with chronic pain, sometimes that pain is … [Read more...]

10 Comments Filed Under: Coping, Fibromyalgia, relationships Tagged With: acceptance, chronic pain, dealing with doctors

Study Shows Fibromyalgia may be a Neurological Disorder

Last Updated: August 10, 2020

Study shows fibromyalgia is likely a neurological disorder

Several studies have now confirmed that fibromyalgia is less likely a rheumatoid or muscular disorder and more likely a neurological disorder. Unfortunately, these studies aren't getting us a faster diagnosis or (more importantly) better treatment options. Neuroimaging is pretty neat. It actually … [Read more...]

6 Comments Filed Under: Fibromyalgia, Medical Studies

Chronic Illness doesn’t make you a failure

Last Updated: August 6, 2020

Chronic illness does not make you a failure

Do you feel like a failure because of your illness? Or, do you feel like a success? Donna over at February Stars shared some great thoughts about how our definition of success relates to chronic illness. We define our own successes, not societal pressures. When you strip it all back what … [Read more...]

2 Comments Filed Under: Fibromyalgia, inspiration Tagged With: sunday inspiration

Celiac is not the only reason people react to wheat

Last Updated: July 30, 2020

Celiac is not the only reason people react to wheat

There has been so much back and forth in the media and even among researchers in the last few years regarding whether or not those of us without celiac disease or a identified wheat allergy can actually react to wheat, with some claiming it's all in our heads. Gluten is the protein that makes up … [Read more...]

Leave a Comment Filed Under: Conditions, Diet and Nutrition, Gluten-Free, Symptoms Tagged With: food sensitivities, gluten, ibs

Finding a pain management doctor

Last Updated: June 25, 2020

Finding a good pain management doctor

When you live with chronic pain, it's not uncommon to be referred to a pain management specialist - aka, a pain clinic. Depending on where you are sent you may find a helpful clinic with doctors who listen and provide an array of options to treat your pain. Or, you may find a clinic with one set … [Read more...]

3 Comments Filed Under: Cluster Headaches, Coping, endometriosis, Fibromyalgia, migraine, Treatment Tagged With: dealing with doctors, doctors

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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