Counting My Spoons

Inspired Living with Chronic Illness

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My experience with chronic illnesses covers several different illness.

I hope that much of what I share on this blog can be helpful to anyone living with (or without) any chronic illness. However, my experience and my posts tend to be geared towards fibromyalgia, endometriosis, migraines, and IBS and my experience with those illnesses.

In addition to sharing my personal experience, I also try to share medical studies and general information pertaining to living with these specific illnesses.

Check out the posts below for information on the variety of chronic illnesses that I cover here, including:

  • Fibromyalgia
  • Migraine
  • Endometriosis
  • IBS

Blogger Tips for Travelling with Chronic Illness

Last Updated: April 11, 2016

how to make travelling easier with chronic illness

How to Travel with Chronic Illness Travelling with Fibromyalgia, or any chronic illness, can be difficult at best. I long for the days when I could jump in the car for a day trip and allow it to turn into an overnight trip without any planning. That's just not reality anymore. These days if … [Read more...]

6 Comments Filed Under: Coping, Fibromyalgia, Tips and Tricks Tagged With: travel

Fibro Warrior – @thewonkeyjen

Last Updated: April 6, 2016

Fibro Warrior: @TheWonkeyJen

Our Fibro Warrior this week is Jen Edwards aka thewonkyjen from Berkshire UK. She lives with her partner, and spends a lot of time with her sister, as they look after each other. She loves pets, and has owned a number of cats, but currently can’t have any pets in her rental. She says that as much as … [Read more...]

Leave a Comment Filed Under: Fibro Warriors, Fibromyalgia Tagged With: interviews

The Flare Survival Kit

Last Updated: April 4, 2016

What's inside my fibro flare survival kit? (image of med kits) Counting My Spoons

Flares are rare for me, these days, and usually when they occur they don't last more than a day. I believe that has a lot to do with learning to accept the flares when they come, and give them room. When I'm in a flare, I don't leave my PJs, I don't shower and I don't work. I do, however, rest, … [Read more...]

6 Comments Filed Under: Coping, Fibromyalgia, Tips and Tricks Tagged With: flares, recovery, relaxation

You Don’t Know (a poem)

Last Updated: March 28, 2016

You don't know what it's like....

I love talking with my readers. Ann is one that emails me on occasion to give me updates on how she is and it's just nice to connect with others who "get it". She shared her story a while back here, and recently she emailed me this poem and gave me permission to share it. You Don’t Know By: … [Read more...]

3 Comments Filed Under: Close to My Heart, Fibromyalgia Tagged With: poetry

Does fibromyalgia increase risk of stroke?

Last Updated: March 25, 2016

Fibromyalgia and increased risk of stroke

Does fibromyalgia increase risk of stroke? It would seem that fibromyalgia may increase the risk of the most common type of stroke, called an ischemic stroke. A stroke occurs when blood flow to your brain is blocked, preventing your brain from receiving the oxygen it needs. An ischemic stroke … [Read more...]

1 Comment Filed Under: Fibromyalgia, Medical Studies

Book review: Take Back Your Life by Tami Stacklehouse Fibromyalgia Coach

Last Updated: March 18, 2016

Book Review: Take Back Your Life - by Tami Stacklehouse, Fibromyalgia Coach

I've followed Tami Stacklehouse for years, so when I saw that her book was available on Amazon I snatched it up. The idea of being a health coach is something that has appealed to me at times. When I had to give up the idea of completing a graduate degree and pursuing counseling in that way I gave a … [Read more...]

2 Comments Filed Under: Coping, Fibromyalgia Tagged With: book review, books

Effects of Music and Vibration on Fibromyalgia (a study)

Last Updated: March 11, 2016

Effects of Music and Vibration on Fibromyalgia

Can music combined with vibration help relieve pain? That's what this 2015 study looks at. Other studies have shown that music can improve pain and symptoms of fibromyalgia, but this study takes it a bit further. This 2015 study combined combined music with vibration via acupuncture to evaluate … [Read more...]

1 Comment Filed Under: Fibromyalgia, Medical Studies Tagged With: alternative therapies, music

Working with Chronic Illness

Last Updated: March 4, 2016

How do you keep working when you have chronic illness? The question of how to keep working when you have chronic illness comes up quite often. It was a common topic around my house as I approached the end of my degree and considered what was next. Fellow spoonies, how on earth do you earn money … [Read more...]

11 Comments Filed Under: Coping, Fibromyalgia, inspiration, Tips and Tricks Tagged With: money, saving money

Juvenile Fibromyalgia Study Seeking Participants (sponsored)

Last Updated: February 17, 2016

Juvenile Fibromyalgia study

Acurian, a leader in medical study enrollment is seeking participants for a juvenile Fibromyalgia study. Does your child suffer from widespread, unexplained body pain that impacts their daily routine? If so, local research study doctors are studying an investigational medication to see if it … [Read more...]

Leave a Comment Filed Under: Fibromyalgia, Medical Studies, sponsored

12,000 Canaries Can’t Be Wrong (book review)

Last Updated: February 12, 2016

12,000 Canaries Can't Be Wrong

  Dr. John Molot is a Canadian physician, specializing in Environmental Medicine. As a result he has seen over 12,000 patients suffering from Multiple Chemical Sensitivities (MCS), Fibromyalgia, ME/CFS and other issues that seem to leave patients with more questions than answers. The … [Read more...]

2 Comments Filed Under: Fibromyalgia, Medical Studies, Symptoms Tagged With: book review, books, chronic fatigue, chronic illness, chronic pain

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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