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You are here: Home / Conditions / Fibromyalgia / 4 Things I Avoid to Keep My Pain Levels Low

4 Things I Avoid to Keep My Pain Levels Low

Last Updated: September 18, 2017

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

4 Things I Avoid to Keep My Pain Levels Low

In August of 2017, I went to Chicago for the Midwest Chronic Pain Education and Treatment Expo. It was a really great event full of vendors showing off unique products and services that help those of us with chronic pain.

As well as, some amazing speakers sharing interesting info on a variety of treatment options. It was also full of people in pain.

While I’ve attended support groups with others who are in pain and I talk daily online with others in pain, I’ve never been in a situation where I was surrounded by so much pain.

In addition to hearing the stories of pain from others, I was surrounded by a lot of activity, noise, lights, and smells (despite many warnings in the literature to NOT wear cologne or perfume). As a result, I found myself in pain.

While I was there supporting Oska Wellness and very proud to do so, I was in a weird cross-position between being there supporting a sponsor but also as a patient.

Related: What is Oska Pulse and how did it change my life?

Hearing so many people talk about their pains, their illnesses, their surgeries, and all that they go through and have been through, brought pain to the top of my focus – something I’ve worked hard to avoid.

Within just a couple of hours I realized I was in more pain than I’d been in months. My whole body was abuzz. I did my best to ignore it and I pushed through it, but I was definitely feeling it.

What was really interesting is that as soon as the event was over and I was back to only being surrounded by a few trusted friends, my pain decreased back to a level that I could ignore.

This whole situation brought to mind a few things that I’ve done to help decrease my pain, or rather things that I’ve avoided because they increase my pain.

4 things I avoid to keep my pain levels low and energy levels high

Support groups

While support groups aren’t all bad, most of those I’ve found (in-person and online) become really negative, drama-filled places where people are focused on their pain.

All of the talk is about pain, a topic I prefer to avoid. I once had a friend ask me how I could write about chronic pain so much and not constantly feel it. My response was “you don’t read my blog much do you?”

There’s a reason I don’t focus on pain in what I write. Focusing on pain brings it to the top of your mind, and when you bring it to the top of your mind, you feel it more.

That’s not to say that support groups can’t be great. Support groups are a very valuable tool, especially in the early days after diagnosis.

Negative people

I don’t know what it is about negative people or energy vampires, but that type of energy suck just increases my pain and fatigue levels, leaving with nothing.

It’s hard sometimes to choose who you spend your time with and when an energy vampire is a family member, especially if they are a caregiver it can be really bad. But, you have to ask yourself, is that caregiver actually giving care? Or, are they making you feel worse?

Over-stimulation

I love fairs, theme parks, concerts, all the places that are full of stimulation. But, I have to be careful about the time I spend in those places.

I try to go to smaller venues for concerts rather than huge arenas. I try to avoid theme parks when they are packed with people.

I can still enjoy those things, I just have to make good choices when I do so. I also have to plan for that stimulation and plan for a quiet place to relax -either alone or with people who don’t suck my energy – after it’s over.

Related: Generalized Hyper-vigilance & Fibromyalgia

Thinking about pain

I do a really good job of not thinking about my pain. I have to be having a really bad day for me to note my pain, and an even worse day if I mention it to someone else.

If I end up in physical therapy or at the doctor and they ask me my pain level I really have to stop and think about it and assess my body, because that answer is NOT top of mind.

There have been times I’ve been surprised to realize just how much I hurt when I’m asked that question, and other times when I’m happy to realize that I’m not thinking about it because the pain is barely there.

Related: 

  • 10 Ways to distract yourself from pain
  • The fibromyalgia treatments that have helped me most
  • 3 “Unavoidable” migraine triggers, and how to avoid them
  • ABC’s of bouncing back from a flare

 

Leave a Comment Filed Under: Extra Spoons, Fibromyalgia, Tips and Tricks Tagged With: chronic pain, decreasing pain

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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