Counting My Spoons

Inspired Living with Chronic Illness

  • About Julie
    • What’s Helped Me Most
      • ToolKit
      • Vital Plan
      • Oska Pulse
    • Contact Me
    • Work With Me
    • Terms of Service
  • Warriors
  • Coping
    • Tips & Tricks
    • inspiration
  • relationships
    • Fibro and Marriage
    • friendship
  • Conditions
    • Fibromyalgia
      • Fibro Warriors
    • migraine
    • endometriosis
    • Medical Studies
    • Treatment
      • Diet and Nutrition
  • Reading List
  • Toolkit
You are here: Home / Close to My Heart / How I reclaimed my life from chronic illness

How I reclaimed my life from chronic illness

Last Updated: May 13, 2021

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

How I Reclaimed My Life from Chronic Pain

Life is a constant state of reclaiming. At least my life is. For every loss I faced, I must then reclaim a life I want. Whatever the struggle, I have to come back and reclaim the life I have chosen. What other choice is there? Giving up? That’s no choice at all.

It’s easy to fall into a rut or lose control of your life in one way or another. Often, I’ve not even realized it’s happened until it’s too late. At that point I must work a lot harder to reclaim my life.

Reclaiming my life from chronic illness was definitely the hardest thing I’ve done. Largely because I spent a lot of time feeling that I couldn’t do it. I felt like it was not in my control.

When chronic illness takes your life away you feel like you have no control. You feel as if no matter what you do you’ll never get your life back, that it’s gone for good. Thankfully, that’s not true. Life can be reclaimed, even from chronic illness.

I chose to reclaim my life, to rebuild. It will never be exactly the same as it was pre-illness, but that’s OK. There will always be concessions and changes, but life is always full of concessions and changes whether or not you are dealing with chronic illness.

Reclaiming my life from chronic illness was definitely the hardest thing I’ve done. Largely because I spent a lot of time feeling that I couldn’t do it. #LifeReclaimed -How I reclaimed my life from chronic illness Share on X

Losing My Life to Chronic Pain

When I got sick in 2010 I felt like I was doing all the right things to get better. I went to doctor after doctor looking for answers. They had none. Or, at least they didn’t have good answers.

As time went on I got sicker and my life was slipping slowly by. I began to imagine spending the rest of my life ill and that just brought on a depression that made me feel worse.

After two years of this I was beyond frustrated. I was seriously considering suicide. What was the point of living a life with no purpose but to lay on the couch in pain? Thankfully, I didn’t follow through.

I was open about how I felt. I talked to my mom and even she understood how I could feel the way that I did. But, something kept me from acting. I believe it was a simple fear of failure.

I didn’t want to attempt suicide and fail. That could leave me in a worse state and I knew it. I also knew I hadn’t really tried everything.

Repeatedly, during those first two years with fibromyalgia I’d had people suggest that diet changes would improve my sleep, decrease my pain, and generally make me feel better. But, I resisted.

Diet change was a huge step. It was a huge change to my life. I was already living my life in pain and depression. Why would I want to give up what little enjoyment I had left?

If I gave up gluten and dairy, what would I eat? Could I really still enjoy life with such a limited diet?

Also, I relied on food to help me feel better, at least mentally. I had a long history of using food as a reward. I had a lot of emotions tied to food. It felt like I’d lost everything else, I didn’t want to lose food, too.

How I reclaimed my life from chronic pain

One Change Reclaimed My Life from Chronic Pain

After two years of chronic pain that left me unable to fully live, I was finally ready to do anything. I was even ready to change my diet.

Somewhere along the way I decided I really had nothing else to lose. I was at rock bottom already.

Somewhere along the way I decided I really had nothing else to lose. I was at rock bottom already, it was time to do something drastic to reclaim my life. #LifeReclaimed – How I reclaimed my life from chronic illness Share on X

What was the worst thing that could come up making the change? I’d give up these foods and it wouldn’t work. If that happened I could always start eating them again.

In January of 2012 I did just that. I eliminated everything – not just gluten and dairy.

I started the year off with a juice fast. For five days I didn’t eat anything and only drank juice. Amazingly, I began feeling an improvement to my energy levels in just those few days.

When I started eating again, I only ate fruits and vegetables. I also continued to juice every day. And, I continued to feel better.

I’d had good spells before. I’d had whole months where I felt almost normal. So, I wasn’t really willing to say I was better at this point. But, I continued on.

I slowly reintroduced foods, adding meat into the mix and eventually grains like rice (but I continued to avoid gluten, dairy, and eggs).

During the fourth week I took a trip. I drove two states away to visit my best friend, so she could show me how her family lives gluten free. I made that drive solo without any increase in pain or fatigue.

Related: Fibromyalgia and Living Gluten-free

A Life Reclaimed

It’s been almost a decade since I removed gluten from my life. I will occasionally eat dairy or eggs because I’ve found that they only cause GI issues.

The few times I’ve had gluten since removing it from my diet I’ve found it to be a major cause of the fatigue that is a key component of fibromyalgia. As a result, I’ve felt it worthwhile to avoid it.

I’ve also found that I haven’t really had to give up a lot of foods I enjoy. Thankfully, there are a ton of great gluten-free replacement foods on the market now. We even have a really awesome, local gluten-free bakery in Huntsville.

A year after removing gluten from my diet I was able to go back to school. In 2015 I graduated with my BA in Psychology. I’ve returned to work and make a decent living again. This is important as I’m supporting myself now following my divorce (yet another way I’ve reclaimed my life).

Related: 

  • Could food sensitivities be making your symptoms worse?
  • Chronic illness does not mean you are a failure: You are a success story
  • The fibromyalgia treatments that have helped me most
  • How Tom lost 150lbs while living with chronic pain
  • Why is there an increased risk of suicide with fibromyalgia?

2 Comments Filed Under: Close to My Heart, My Life, sponsored Tagged With: chronic fatigue, chronic illness, chronic pain, recovery

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Cat says

    October 10, 2018 at 4:42 pm

    I have a ? Did your doc ever do a gluten intolerance blood test prior to your diet change & if yes, what did it show

    Reply
    • Julie says

      October 11, 2018 at 12:22 pm

      I had a gluten sensitivity panel right at the beginning of my diet change. It showed sensitivities to gluten, whey, yeast & eggs. I find that gluten and yeast are the biggest offenders for fibro… whey and eggs just make my stomach feel yucky and aggravate IBS symptoms.

      Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

Common Tags

abdominal pain acceptance alternative therapies anxiety asking for help book review books brain fog cbd oil chronic fatigue chronic illness chronic pain communication dairy-free dealing with doctors decreasing pain decreasing stress depression diagnosis diet doctors documentary family feeling better flares food sensitivities gifts health holidays ibs interviews mental health oska pacing pain relief product review review self-compassion sensitivities sleep sleep aids stress sunday inspiration support travel

Copyright

All content copyright CountingMySpoons Any content reblogged from this site must adhere to the terms of © Copyright and TOS
That page states in part: "A brief excerpt of content that does not exceed 75 words may be quoted as long as a link is provided back to the source page on this blog and authorship is properly attributed."

Proudly Hosted By:

Wordpress Hosting Done Right

Proud To Be Included

 

Chronic Illness Bloggers
 

Privacy Policy

Counting My Spoons respects your privacy. Your information will never be provided to any third party unless you provide explicit permission to do so (something I'm not likely to ever ask you to do).

Read full privacy policy

Content Copyright © 2025 - Webz Plus Inc