Counting My Spoons

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The Struggles of Being a Mom with Chronic Pain

Last Updated: July 10, 2017

The struggles of being a mom with chronic illness

The Struggles of Being a Mom with Chronic Pain Guest post by Andrea Wool of AutoImmuneStrong.com “Mommy- can you play tag with me?”“No, sweetie- I am so sorry, but my body really hurts today and I feel so tired.” “Mommy- can you play a game with me?”“In a minute, sweetie, Mommy really needs a … [Read more...]

Leave a Comment Filed Under: Coping, relationships Tagged With: chronic fatigue, chronic illness, chronic pain, communication, parenting

When Your Partner is Struggling with Chronic Illness and Pushing You Away

Last Updated: April 17, 2017

What to do when partner is struggling with chronic illness and pushing you away

The below came from an email sent to me by a reader. After I answered his email I realized that he's so not alone and that my response might be helpful for many other partner's of those with chronic illness, so I asked his permission to share his question. "My wife suffers from chronic illness. … [Read more...]

11 Comments Filed Under: Close to My Heart, Coping, Fibro and Marriage, Fibromyalgia, relationships Tagged With: communication, sex

3 Things to Remember When Dealing with Toxic People

Last Updated: February 27, 2017

3 things to remember when dealing with toxic people

Toxic people are just a matter of life. No matter how hard we try to avoid them we often find ourselves surrounded by people who just suck the life out of us. These are often people who are extremely self-centered, never allowing others a word. Sometimes the toxic people in our lives are family … [Read more...]

Leave a Comment Filed Under: Coping, friendship, relationships Tagged With: communication

Sometimes saying No isn’t an option

Last Updated: January 9, 2017

sometimes saying No isn't an option

 Some of us (myself included) have a bad habit of saying yes way too much. We say yes without thinking, without checking our calendar, without really considering if saying yes is really the best thing for us (or even for the person we are saying yes to). The last few months have been a real … [Read more...]

Leave a Comment Filed Under: Coping, Extra Spoons, inspiration, My Life Tagged With: communication

How Chronic Pain Affects Sex in New Relationships

Last Updated: October 21, 2016

chronic illness affects sex in new relationships

Chronic illness affects sex in relationships. The sad truth of the matter is that sexual dysfunction is almost the norm for those of us with Fibromyalgia, and for many other chronic illnesses. There are a lot of differences, though, between chronic pain hitting existing established relationships and … [Read more...]

2 Comments Filed Under: Coping, Medical Studies, relationships Tagged With: acceptance, anxiety, communication, sex

Talking With Your Doctor About Pain

Last Updated: April 1, 2016

Talking with Your Doctor About Pain

  How to Talk to Your Doctor About Pain by Jim Sliney Jr, RMA Talking about your pain is one of the most challenging conversations you will ever. You are bound to have it with your doctor, or with friends and loved ones, and each time you do it’s going to be unpleasant. Why? Because to … [Read more...]

4 Comments Filed Under: Coping, Tips and Tricks, Treatment Tagged With: communication, dealing with doctors, doctors

Review: The Patient’s Playbook – How to Save Your Life and the Lives of Those You Love

Last Updated: August 28, 2015

It's rare that I will pick up a paper book by choice and read it anymore. But, every once in a while a book will come my way that I want to read bad enough that I will deal with the paper. That's what happened when I saw The Patient's Playbook by Leslie D. Michelson show up in my Amazon Vine queue. … [Read more...]

4 Comments Filed Under: Coping, Tips and Tricks Tagged With: book review, books, communication, dealing with doctors, doctors, health, medical records

The Importance of Being Vulnerable

Last Updated: March 29, 2015

The Importance of Vulnerability

Vulnerability is difficult. Too often we associate vulnerability with weakness. Even looking at the thesaurus for synonyms that's what we find, weakness, exposed, sitting duck, naked, defenseless. But, what we don't realize is that it's the avoiding vulnerability that really makes us weak. … [Read more...]

8 Comments Filed Under: Close to My Heart, Fibro and Marriage, inspiration Tagged With: communication, sunday inspiration

The Pain Scale is a Chronic Pain

Last Updated: January 26, 2015

Chronic pain and the pain scale

 I hate when doctors ask me to rate my pain.  It's probably my biggest pet peeve when visiting the doctor (right up there with being weighed - who needs that stress?) How am I supposed to rate my pain? They say it's on a scale of 1 to 10, but what am I comparing it to? Recently, I had a … [Read more...]

4 Comments Filed Under: Coping, Fibromyalgia, Symptoms Tagged With: chronic pain, communication, dealing with doctors, doctors

Sunday Inspiration: Dealing with Unsolicited Advice

Last Updated: October 26, 2014

Living with chronic illness at times feels like you are wearing a sign that reads "Please  offer unsolicited advice". Everyone seems to want to give us advice on what we are doing wrong, how we can feel better, etc, and the truth is that most of the time we want to smack them for doing it. Often … [Read more...]

8 Comments Filed Under: Close to My Heart, friendship, inspiration, relationships Tagged With: communication

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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