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You are here: Home / Conditions / Fibromyalgia / No one understands chronic pain until they get it

No one understands chronic pain until they get it

Last Updated: December 11, 2020

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

What’s the difference in sympathy and empathy? Only someone who shares our experience can really be empathetic, because no one really “gets” chronic pain until they get it!

To be empathetic they don’t’ have to be in the hole with us, but they do have to have been in the hole at some point. Those who were in the hole (people who share our illness but have found ways to overcome it) can often provide us the best tools for getting out of the hole.

1. They Get it – I think this is why it’s so important to connect with others who share your illness, whether it’s in a local support group or online. I suggest doing both. We need to be able to surround ourselves with others who “get it”, with others are down in the hole with us. It’s not the the people who aren’t in the hole can’t offer us help (and a sandwich) but because they are not in the hole with us, they don’t really understand what it is that we need.

2. They become our team – when we get to know others who share our illness we can work together to find solutions. We can connect with others who have been in the hole before and they can share how they managed to get out of the hole. We can work with others who are still in the hole with us to find answers, as well.

3. We are visible – those who empathize with us really SEE us for who we are, and understand what we are going through. Someone who simply sympathizes with us may see us, but they don’t really understand and as much as they might try they likely never will.

What is the difference between sympathy and empathy? Share on X

Now, that’s not to say that someone can’t empathize with us without having to share our exact circumstances. Sometimes it’s a matter of saying “I’m not in that hole, but I’ve been in a similar hole before so I get what you are going through.” Everyone has had hurts before, we all carry scars with us, and if we look inside ourselves we can likely find a way to really empathize with most people -if we try.

One final point, no one can empathize with us unless we give them the chance. We have to stop being invisible. Yes, our pain is invisible, but that doesn’t mean we have to be. We can speak up, we can be open, we can tell others about our lives and our illness and we MUST! We must start being visible, and vulnerable, and honest if we want others to empathize with us, because if they can’t see our truth there is no way that they can empathize with it.

We must allow others to see us for who we are if we want them to empathize with us. #spoonie Share on X

Empathy: pass it on!

 

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  • How to Help Your Chronically Ill Friend Feel Worse

3 Comments Filed Under: Fibromyalgia, friendship, relationships Tagged With: chronic pain

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Donna says

    April 27, 2015 at 8:05 am

    You know, I had a reminder the other day (or well couple of days) that acute pain and chronic pain are two completely different things and one doesn’t mean you can understand the other. I think people can relate to being in pain. Everyone will have experienced it to one level or another. But it’s a completely different ball game when you are living with pain day in, day out for years. I think that’s what people find hard to understand. Plus, we just get on with things because we have to. Like you say, it is so important to open up and be vulnerable because it is hard to empathise with someone who looks okay. What people imagine someone looks like when they are in pain does not match up to how most of us appear. We are incredibly tough!!

    Reply
    • Julie says

      April 27, 2015 at 2:34 pm

      Yes we are. I know some don’t agree with this idea that you can’t be truly empathetic of a situation until you’ve been in it, but I do believe it’s true.

      Reply
      • Donna says

        April 27, 2015 at 3:06 pm

        I think it’s true. I am a sensitive person by nature and do take a “how would that make me feel” approach to things. I do my best to imagine what it would be like to go through something by being there and listening to someone explain what they are going through. I’ve genuinely been heart broken for people before even though it’s not me going through the experience. But I don’t claim to know how they are feeling. I know it would be entirely different if I were in there shoes. I can be incredibly supportive but don’t believe I can show true empathy until I’ve been there myself.

        Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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