Thinking back to my worst days with Fibro it was often a toss up as to whether the pain was worse or the brain fog. At the time I would have probably said it was the pain, and that I’d rather have the all-encompassing brain fog because at least then I was so out of it I didn’t notice the pain as much. These days the pain is light enough that I can ignore what is there. Unless my shoulder is acting up (usually because I did too much of something – writing, exercising – or because I tried to wear a bra) I can ignore the pain that is there. Every once in a while the general pain will flare up for a few hours or a day for no reason.
The brain fog still shows up occasionally as well. It and sleep are my two big issues now and really neither of them are anything compared to what they used to be. The all-encompassing energy suck is by far my biggest nemesis these days when it comes to Fibro. When it hits I just can’t do anything. My brain still works and sometimes I can still manage to get some work done because my brain is still firing. But, occasionally, the energy suck hits with brain fog attached and then I can’t do anything but watch “reality” TV (cooking shows, dating shows, etc).
What I experience is in line with about 19% of Fibromyalgia patients who report that lack of energy is their primary symptom.
Of course, we are not the majority. After all, the hallmark of Fibromyalgia is chronic pain. So, it makes sense that 45% of Fibro patients report that pain is their worst symptom. While this survey is old (published back around the time I was diagnosed). I doubt seriously that the numbers have changed much.
I realize that not all of my readers have Fibromyalgia. You may have another chronic illness that causes you pain, brain fog, or steals your energy. But, I’m still curious to know. What is your worst symptom?