There are a million books on “How to Cure Your Fibro” out there and every one of them has a different answer. Sometimes it’s someone who “had” Fibro that suddenly found a cure via changing their diet, and most of the time it’s some Dr who has come up with the “right” answer to end all our suffering. The truth, however, is that none of them are based on any real tested scientific proof, and more often that not reading them just leaves us feeling worse.
Maybe, just maybe, if I followed everyone of these books to the letter I might feel better for the rest of my life. If I cut out all sugar from my diet, and caffeine, and gluten, and if I took a massive dose of Mucinex three times a day for the rest of my life to loosen the mucus in my body it would cure me. But, the truth when you get down to it is that there’s always more to it than that one thing they want you to do and when you start out reading these books it’s easy to think “yeah, could do this” only to get further and realize that you just don’t have it in you. Another big “trick” to these books is that you should always stay positive, that we don’t really have Fibro but just a case of depression causing our pains and lack of sleep. Nothing like being told to “perk up” to make you feel worse.
When it’s all said and done, we end up with this massive case of guilt because we couldn’t “do it” whatever it was that the book said we should do to make ourselves feel better. We couldn’t stick it out. The truth is that no one knows what causes Fibro, let alone what to do to fix it. We are all proof of this when we have a great month where we feel “normal” and sleep well only to have it end and another flare return. We end up looking back at that month and thinking “what was I doing different?”, “What did I stop doing that sent me back into another flare?”. And the truth when we dig deeper is absolutely nothing. We did the same thing we’ve been doing and we haven’t stopped, yet something has changed within our body, something that we really don’t have control over.
So, the reason I’m not reading any more of these “cure” books is that I know that all they do is make me feel worse. There is no “cure” at least not in the sense they want to provide. There is no Dr that has all the answers. If there was, he wouldn’t just be writing a book, he’d being doing scientific studies to prove that his cure works and then screaming the news from the rooftops. But, since he can’t do that, he can write a book. Anyone can write a book, but that doesn’t mean they have the answers.
Regina says
Smart decision! I also stopped the reading…It’s hard to take them seriously.
I think everyone should do what make them feel better. There will be really bad days and there will be good days, but I think never days that we fell 100% good.
Hugs
Becky says
Amen, sister! I agree…there is no rhyme or reason to me feeling this way! Sure, there are things we can do to *help* but nothing consistently makes it better. Just try to stay on a good routine and hope it produces less flares! I still find them interesting to read, but don’t take them too seriously.
Tammy @ The Stitching Coop says
GOOD FOR YOU!! I stopped about 7 years ago after 4 years of trying everything. If these people were right, they would be rich beyond their imaginations, don’t ya think? I also don’t like snake oil sales people always peddling the newest diet or herb to cure me. REALLY… really now? it will cure RA and a host of other issues I have, REALLY NOW? Do what makes YOU feel better and then repeat!!
Hugs
Tammy
yngathrrt says
Julie, this is such a good blog, and so very true. We never know when a flare will pull us down, so we have to pretty much take the good days with the bad. I have been sufferig with Fibro since 1996, and I do feel it gets better at times, only because I am use to the pain and have developed a lot of tolerace for pain. But then, there are still those awful days when the pain, chronic fatigue and sleepless nights are so horrible. I am so sorry you have to go through this. At one time I felt like I was not living but only existing, and every now and then I still have those days. Hugs Katie