I wrote a bit on Cognitive Behavioral Therapy and Fibromyalgia a couple of months ago. Today, I ran across an article which discusses the topic again.
Reading this article, it almost comes across as if the author is saying that if people with Fibromyalgia would just tell themselves it doesn’t hurt, it would stop hurting. I’ve tried it, it doesn’t work. Another thing that bugged me about this article is that at the beginning when it attempts to explain what Fibromyalgia is, it almost comes off as if they are saying that it’s all in our heads. Which is just re-enforced by their idea that thinking it doesn’t hurt will make it stop hurting.
When I wrote before, I talked about the “Fear of Pain” and how the stress of worrying that something might cause pain later, or may actually make it hurt more. I do believe that is true. When we are stressed or worried, we tense up and that does cause more pain. But, that’s not the only cause. There are things that really do cause pain, and because our neurotransmitters are screwed up and our nerves are screwed up, we feel it more than most people do. My personal belief (and the cause most widely acknowledged for Fibro) is that the problem is caused by some major trauma. Basically, at some point, something happened to us that caused a great deal of pain for a long period. After experiencing so much pain for so long our nerves basically went on constant alert and thus begin to feel everything MORE.
For me, that first trauma was TMJ. I won’t go into what set it off but it resulted in 3 months of intense myofascial pain followed by the next 18 months of generalized pain, as well as bouts of intense pain (usually caused by some activity). After those 18 months, at a time when things seemed to be getting better, I got hit with what I thought was the flu. Said “flu” lasted for 2-3 weeks, caused me to miss classes and work and did not seem to want to go away. Once that “cleared” up, I was never the same. I never got my energy back and remained fatigued. Around the same time, a treatment related to my TMJ caused that problem to flare up leading to more extreme pain that lasted for 4-6 weeks. At this point anything could cause me to “flare” but most likely it’s the same things that cause me TMJ pain. Yes, I avoid doing a lot of things for “fear” of possible pain and flare-ups. But there are so many things that I would never think would cause me pain or “a flare” and yet they do.
If all I have to do is change the way I think, then the things that I “don’t think” would cause me pain, shouldn’t cause me pain. Just sayin’.
What the Fog says
Julie, I agree. I really think even doctors don’t realize how much pain some people are really in. People have different thresholds. I have always waited until pain is at a crisis level before asking for help, AND I am very stoic when in pain and so I’m sure the doctors think that it is not that bad and don’t realize that by the time I ask for help I am just hanging on by a thin thread.
Julie says
Patti – when I was in physical therapy a few months ago (the first time for Fibro) the therapist (a young girl with little experience) asked about my pain level. That day I wasn’t having too bad of a day, I said “oh about a 7, not too bad”. She just looked at me like I was crazy. They don’t realize how much pain we ignore. Anything up to a 5 I can ignore easily, sometimes even up to a 6 or 7 and I can act like it’s not there. Until you’ve spent a decent amount of time at level 10, you really have no idea – and luckily – most people don’t have to do that.
What the Fog says
Great post! I broke my foot 4 years ago and have had pain ever since. The foot pain remained constant. The body aches and stiffness were there too, but I never mentioned them to the many docs I went to because I could ignore that pain and didn’t think they were related anyway. This January I also had “the flu”, then in March, then May. Never recovered from the first one. By May I said “well, maybe this isn’t the flu and I should see a doctor” (ya think?) . I have been so used to ignoring my body and tuning pain out that I was almost bedridden by the time I went. I do agree that stress can increase pain, but if mind over matter is all we need then most of us would be out enjoying our lives, not spending all of our free time looking for a way out of this. Thanks,
Patti