I received this video on “The Slow Death of Compassion for the Chronically Ill” a couple of weeks ago and just finally got around to watching it. The quality could be better, but Ken McKim makes some great points. It’s a bit long (30 minutes) but worth watching, and worth sharing with those who question our illnesses, and especially with those who believe that pain meds need to be even more controlled than they currently are.
Video: The Slow Death of Compassion for the Chronically Ill
Ok. I’ve thought a time or two that perhaps my “over-sharing” on my blog (and then to Facebook, etc) may make some of my friends uncomfortable. But, honestly, these are my “friends” (most in the internet sense, some in the very real sense) so I would hope that they would love me regardless. The idea that some co-worker or something would look at me and think “I wish she’d stop looking so sick, it’s getting on my nerves”. Ok. Think it. I get it we all have negative thoughts towards people. But, you don’t say that shit!
What hearing this story made me realize is that we need to stop hiding it. We need to stop letting the “norm” of what people see be the super inspirational stories and have them start seeing that we are all inspirational, for just fighting through each day. Sometimes, just getting out of bed is enough. People need to be so bombarded by seeing what our normal looks like that it becomes normal to them. Not to the point that they can ignore it completely, but to the point that they notice, that they realize we are here.
If we take nothing else away from this video, it should be that we need to be more honest about our illness, more open. Stop letting our pride get in the way of allowing our invisible illnesses to be visible. If we need help we need to reach out and take it, and not deny ourselves those things we need because we don’t want people to see how bad we really feel, or because we don’t want to make others uncomfortable.
It’s time for those of us who are chronically ill to start making our illness more real to those around us.
I’ve been lucky so far to avoid having to take pain medications for Fibromyalgia. I’ve done my best to delay that need as much as possible because I know that once I begin the tolerance will build and my body will need more and more to do the same job. The same level of pain I feel now will feel worse because my body has gotten used to a certain level of pain medications. That said, I understand that a lot of people are in a lot worse pain than I am. They need pain medications. People who need pain medications should be able to get those medications. This idea of making pain medications more difficult to get for those who need them, is bullshit. If a doctor agrees that you need a pain medication, a drug store or even the government should not have a say in who gets their prescriptions filled.
Related articles across the web