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You are here: Home / Conditions / Fibromyalgia / How do we Communicate Pain?

How do we Communicate Pain?

Last Updated: June 23, 2020

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

 

While taking Nonverbal Communications, our first assignment was to review a scholarly article. Upon reading through our list of choices one caught my eye right away. The title: “How Do We Communicate Pain? A systematic Analysis of the Semantic Contribution of Co-Speech Gestures in Pain-Focused Conversations”. That’s a long and wordy way to say that this study examined how we use hand gestures to describe pain.

I think most of us who live with chronic pain will agree that we communicate as much about our pain non-verbally as we do verbally. One interesting thing that this study mentioned was that those with chronic pain show less pain in our faces. Basically, we’ve learned how to hide it in our face. But, just as with communicating dishonesty, in general, people can typically disguise their true feelings in their facial features more than they can in their actual gestures (hand and body movements).

So, this study examined 18 undergraduate students who had experienced an episode of pain in the previous two-week period. The pain they experienced varied and included tattoo, headache, blister, toothache, back or neck pain. The participants were not told they were being monitored for gestures, and were only told that the study was to evaluate how people communicate pain verbally. Participants were interviewed individually and in-person, and asked a variety of questions to get them to describe their pain. The interviews lasted between 4.5 to 18 minutes.

How do we communicate pain?

The hand gestures used during the interviews were broken down into those that were associated with the pain descriptions and those that were general gestures or posture changes not associated with the pain description. 1759 gestures were classified.

The gestures were evaluated to determine if they fit in one of eight categories related to pain description: location, size, quality, intensity, duration, cause, effects, and awareness. Overall, significantly more information about pain was communicated by gestures than through verbal description.

66% of the information regarding the location of our pain, and 92% of the information about the size of the pain, is conveyed via gestures. Most of the other aspects are conveyed through a combination of gesture and speech together (either one alone would not convey enough information to be valuable).

Think about how you describe a headache. Your hand goes up to your temple and your fingers form the shape of exactly where it hurt and how far the pain extended. You may even move your hand away from your head and then back towards it repeatedly to show that it was throbbing. We do this when describing pain throughout the body. When I describe my shoulder pain I will grab my shoulder where it has been hurting. When a friend described her arm going numb she held it away from her body and shook it as if she was trying to “wake it up”.

The real significance  here is in our communication of pain with our doctors. Unfortunately, too often they are not paying attention to our visual cues, or gestures when they talk to us. They are often looking at our chart or a computer instead of at us, and therefore may miss important aspects of our pain descriptions.

It’s up to us to make sure we are doing everything we can to communicate our pain to doctors, as well as to others who matter. We have to make sure we are using descriptive words and not relying on others to see our pain, because too often they aren’t looking.

 

Have you ever thought about how much of your pain you communicate non-verbally? Share on X

 

Related Posts:

  • The Chronic Pain Scale: Communicating Your Chronic Pain
  • Every Pain Experience is Different
  • Talking With Your Doctor About Pain
  • 3 Things that Affect Our Communication with Doctors

 

 

 

reference:

Rowbotham, S, Holler, J., Lloyd, D. (2011). How Do We Communicate About Pain? A Systematic Analysis of the Semantic Contribution of Co-Speech Gestures in Pain-focused Conversations. Journal of Nonverbal Behavior, 36, 1-21. doi: 10.1007/s10919-011-0122-5

3 Comments Filed Under: Fibromyalgia, Medical Studies, Symptoms, Treatment Tagged With: chronic pain, communication

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Melissa says

    October 3, 2014 at 9:53 am

    I don’t have a poker face (despite a ton of Botox for my migraines). Everything registers on my face, especially pain. My cheeks turn bright red as the pain builds, then I turn sheet white. When the pain is especially oppressive, I get lost in it and display that 1000 yard stare.

    I’m very detailed and descriptive of my symptoms including pain. My GP and specialists say being that descriptive is important and helps them to help me. For example, the pain I began experiencing 6 months after my gallbladder was removed felt like a white hot, serated knife going through my upper left abdominal quadrant.
    My doctor sent me for a CT scan and an MRI just to make sure nothing was left behind. But, based on the description, he believed it was (and it is) nerve damage.
    There are some universal non-verbal cues that express pain. But, to get the quickest, most accurate help, you must be as descriptive as possible.

    Reply
    • Julie says

      October 3, 2014 at 10:50 am

      You are right. This is a good reminder to all of us that we need to work on better describing our pain. Sometimes the words just fail us.

      Reply
  2. Heather Hammel says

    October 3, 2014 at 6:57 am

    This is very interesting and so true. And I definitely agree with you on doctors not paying attention to our gestures or visual cues. Even my psychiatrist looks at his computer screen while I’m talking rather than looking at me.

    Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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