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You are here: Home / My Life / Building a Solid Healthcare Team Isn’t Easy

Building a Solid Healthcare Team Isn’t Easy

Last Updated: February 11, 2019

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

Over the last decade I’ve really struggled to build a medical team I can trust and I think I have finally almost managed it… just in time to barely need most of them.

My greatest struggle has been finding a good general practitioner. For about two years I didn’t have one at all and strictly when to Urgent Care when needed.

This was largely due to the insurance I had at the time not being widely accepted in my area. However, with some doctor’s, I felt I was better off going to Urgent Care because the doctor’s hours were so terrible that it was impossible to get an appointment when I needed it.

I’ve left other doctor’s just because it felt that their level of care had waned. There are many good reasons to change doctors.

These days I have what I feel is a solid team of doctors who listen to me. Doctors who care about me and who will do their best to find answers for new issues as they arise. 

Building a solid healthcare team isn't easy

My Doctors

I have a full team of doctors. It seems I have almost every type of specialist. It’s important that your doctor’s listen to you. And, also that they communicate with each other. However, probably most important is that they look at you as a whole person instead of just looking at their one particular area of focus.

All of the issues we deal with overlap. If a doctor is only looking at one piece, they are missing the much bigger picture.

General Practitioner (Laura Lee Taylor) – I finally have a good one that I really like.

She has a great team of Physician’s Assistants and Nurse Practitioners, which means that there’s someone available when I need to see someone. And, so far every one I’ve met has been great, took the time I needed, and listened to what I had to say.

My mom referred me to this particular doctor. She’d spoken highly of her many times, but it wasn’t until I took my mom to the doctor once and actually saw how the doctor and her staff interacted with my mom that I made the effort to become her patient.

It took a while (thanks to crappy insurance) but once I had insurance they would accept I was in (largely due to my mom being a patient there) and I’ve been quite happy with the care.

One big difference with her that I’ve found is that she’s the first GP I’ve had that actually tries to oversee my care. She forwards tests to my other doctors and stays in the loops. She doesn’t just refer and forget, choosing to only look at the simple issues.

Gynocologist (Sharon Callison) – Every woman needs a good gynecologist.

Whether you prefer a male or female is totally up to you.  Early on I felt uncomfortable at the idea of a male gynecologist. However, after seeing a female one who made me feel like I was on a factory line, I’ll say that there are good ones and bad ones of both genders. 

I’ve been with my current gynecologist for about 15 years and I really like her. However, it’s important to understand your doctor’s limitations. I opted to have her do my first laparoscopy for endometriosis.

She’d already provided me with a recommendation to see a specialist, but I didn’t want to wait that long. To be fair, I don’t think either of us really thought she’d find much. However, she was overwhelmed with the level of what she found and was unable to remove it all.

Endometriosis is not her fortay (pap smears and delivering babies is her thing). As a result I still had to see a specialist to have yet another surgery. I only wish I’d seen him first. 

Pelvic Pain Specialist (Alex Childs)- If you have pelvic pain (or endometriosis) see a doctor who specializes in just that. It could save you a lot of pain and suffering.

My pelvic pain doctor is amazing. He’s now done two surgeries on me, each with less pain than the one before. (That first laparoscopy that my local gynecologist did was extremely painful). 

Last week, he “graduated” me. After six years of his care and so many struggles, we’ve now had almost two years without pain. And, my endometriosis symptoms (beyond pain) are finally under control. 

He’s still there if I find I need him later, but hopefully I won’t.

Neurologist (Scott Hitchcock) – I was first referred to my neurologist TMJ activated chronic migraines. Of course, we didn’t know it was TMJ at the time.

It was my neurologist that ran the million and one blood tests when I began experiencing eye pain and tingling in my arms. And, it was my neurologist who eventually referred me to a rheumatologist. 

Since then I’ve had several bouts of chronic migraine and other symptoms and he’s been there to listen and follow-up each and every time. 

Thankfully, the last year and a half I’ve had far fewer migraines and we’ve not needed to see each other nearly as often.

Rheumatologist – This last year I decided to move away from my rheumatologist.

I felt that our appointments were becoming pointless for occurring so often (simply so I could get medication refills). The co-pay for a specialist visit is much higher than my general practitioner and my GP was happy to make sure my prescriptions stayed filled (as long as I continue doing well).

That said, I may have to go back. My annual bloodwork showed some autoimmune markers that I will most likely need to have looked at. 

TMJ Specialist (H. Clifton Simmons) – I don’t know where I’d be without this guy. He’s so worth the two hour drive.

After months of struggling with a chronic migraine that nothing relieved. It was my chiropractor who suggested it might be TMJ. I began researching and my research led me to Dr. Simmons. He was two hours away, but after emailing with him a bit I knew it was worth the drive.

He confirmed it was TMJ and explained why having braces put on would have activated it. Treatment is long-term – I’ll be wearing a retainer at night forever. The first two years were more intense, but I graduated from treatment earlier than expected.

I continue to use his office for all my dental needs because they understand my needs.

Edit (April 18, 2019): Sadly, I learned that Dr. Simmons passed away on January 1. He will be greatly missed.

Chiropractor (Donald Ross Jr) – Not all chiropractors are created equal (just like not all doctors of any type are created equal).

Never see a chiropractor that doesn’t do x-rays at your first visit. If they don’t do x-rays they have no idea what problems you may have that they may be making worse.

Dr. Ross has always been professional and really listens. He was there for me when no other doctor has been (many times over). He’s been the one to order MRIs and has referred me to other doctors when necessary.

When I was struggling with chronic migraines he suggested acupuncture (another service he provides) might help. It was the only thing that really did help at all. He was also the doctor who suggested that he thought I might have TMJ. He was right. 

 

Gastro-Intestinal Doctor (Julian Billings) -I’ve gone through several GI docs in the last decade as I struggled to find the answer to many issues. Dr. Billings is amazing.

I recall some bad experiences with the doctor’s I had prior to him. The most glaring issue was when I asked my then doctor if food could be causing in any of my gastric symptoms (and if changing my diet would help). He said no outright.

A month later I completely changed my diet and saw marked improvement on so many levels. I believe if a GI doc doesn’t look at what you put in your gut (including meds) as a potential  cause for your GI symptoms, there’s an issue.

 

I share this both to help those local to me know that these doctors are great. But, also so that everyone can see that there are great doctors out there and it is possible to build a solid team. But, it doesn’t happen overnight.

It’s taken me over a decade to build this team and I’ve been lucky. But, it’s not just been luck. I’d say that it largely comes from my unwillingness to accept anything less than solid healthcare. And, you shouldn’t either.

 

Do you have a team of doctors you trust? If not, it might be time to find new doctors.

Related Posts:

  • Talking With Your Doctor About Pain
  • Are Doctor’s Biased Against Patients?
  • 3 Steps to Choosing the Right Doctor
  • 4 Good Reasons to Change Doctors

6 Comments Filed Under: Huntsville Stuff, My Life Tagged With: communication, doctors

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Cody says

    April 8, 2019 at 2:35 pm

    Julie,

    I was a patient of Dr. Simmons as well. Were you aware that he passed away back in January?

    Reply
    • Julie says

      April 12, 2019 at 12:13 pm

      I just found out a couple of weeks ago when I went up to get my wires checked (was having increased TMJ symptoms and felt like one of my wires was loose). Saw the sign on the door. It’s so sad. And, so far no sign of replacement and most of the younger doctor’s he’d brought in have left so no one who can really treat TMJ – just a fill-in dentist 🙁

      Reply
  2. Lita says

    March 21, 2019 at 3:08 am

    Are you on medical disability? I have Fibromyalgia, chronic thoracic back pain, endometriosis, major depression, sleep issues, restless leg syndrome I think no one will tell me what I am having when I have these weird symptoms, neck pain. I fall a lot. Just basically life sucks! Hate going to doctor cause don’t have job to pay doctor bills. Tried ones to get on disability and they told me I could leave my family to go get a job that I could do with my disability because there were no jobs available in my town to do with all my problems. Then you see people with minor disability working and getting paid cash under the table. If it weren’t for my husband and three kids I just don’t think it would be worth going every day. Sorry to dump this on ya but I need some guidance. Whenever you got the time. I not going anywhere or doing anything important just living in pain.

    Reply
    • Julie says

      March 21, 2019 at 1:40 pm

      I’m not on disability. While I’ve had bouts where I’ve been unable to work, I’ve been able to work enough on a freelance basis (from home) to take care of myself. The idea of having to go on disability is probably one of my greatest fears.

      Where are you located? I’ve never heard someone suggest leaving your family? Have you talked to a disability lawyer? From what I’ve seen that’s usually the best bet as they know how to approach the system and get you through.

      Reply
  3. Sue says

    February 11, 2019 at 3:47 pm

    I bought that Oska and it didn’t do anything for me except make my pain worse- such a waste of money!

    Reply
    • Julie says

      February 11, 2019 at 5:31 pm

      Sue, I’m so sorry to hear that. There’s really no reason it should make your pain worse. Overall it is beneficial for more than 90% of those who try it, but it may have something to do with the source of your pain that needs to be identified.

      They do have a 30 day money back guarantee, as well. So, if you are even close to that period and haven’t already contacted them about a refund please make sure to do so (even if you are a little beyond it).

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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