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You are here: Home / Extra Spoons / You Know You Have Chronic Illness When…..

You Know You Have Chronic Illness When…..

Last Updated: June 19, 2017

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

You Know You Have a Chronic Illness When

Guest post by: Megan Hastings
June 2, 2017

When living with a chronic illness, seemingly trivial tasks or things healthy counterparts do can often seem like insurmountable challenges for you.

While I was at the beach with my children on a warm summer day, my body started telling me I needed to go lay down. I know when this happens and I am away from home, I need to pack my kids up immediately and get home to rest my body. We had only been at the beach half an hour, so it was no surprise my children were disappointed to leave so soon. I felt like I had let them down, but knew I had done my very best and couldn’t let myself get discouraged.

As I was driving home, these thoughts came to my mind. I wrote them as a sort of humorous way to cope with the stresses of chronic illness. I hope you can share in and enjoy the humor that life sometimes throws you.

You know you have chronic illness when.... (25 times life reminds you that you have chronic illness) on Counting My Spoons

You know you have chronic illness when….

1. The kids “quiet time” is actually your nap time so you can rest your body. Unfortunately for my children, there is also more than one quiet time per day.

2. Planned outings often get cut short leaving your children to ask why others get to stay longer.

3. Pepsi, combined with ibuprofen, is your daily medicine used to relieve pain, not the enjoyable treat it usually is for others.

4. Your kids response to “What is your mother’s favorite thing to do” is sleep.All about Mom - Moms favorite thing to do is Sleep

5. When your friends want to go to St. George and you live in Salt Lake (a 4 1/2 hour drive), you look at how much flights cost so you can join them because you can’t handle being in the car that long.

6. Reading books and writing articles become your favorite pastime even though you still don’t know what an adjective or verb is.

7. Your spouse carries heavy bags and does hard chores because he knows how much your body will hurt if he doesn’t. He also knows how proactive you are and is constantly reminding you to pace yourself, which is hard to do.

8. Your kids friends often see you laying in your bed with your leopard-printed blanket resting.

9. You take more than a couple hot baths a day.

10. The gym daycare discounts your punch card because they know you only workout for 15-20 minutes instead of the hour they charge.

11. Going to the doctor scares you and not because of the needles, but because you’re afraid they will find nothing wrong with you.

12. You have an excellent medical vocabulary.

13. When your spouse is looking for you, he knows to look in your bed or the bath first.

14. Walking to your mailbox and back while pushing a stroller a is a big accomplishment.

15. Heated car seats are a huge blessing, not just for the warmth, but for the pain relief.

16. Your kids are dang good at cleaning up and taking care of themselves.

17. You eat healthy foods your grandma thinks are cardboard, but you secretly like.

18. You hate the cold, but despise the heat even more.

19. You have a schedule for chores, but know it probably won’t get done, and you have to be okay with that.

20. You want to do fun things that people your age don’t think twice about, but know you’ll pay for it later. You do them anyways because part of caring for your mental health is to live.

21. Your kids pray for you and always tell you they wish you could get better soon.

22. You are making an oasis in your backyard because you know that’s probably as far as you’ll travel, at least very often.

23. Your house is decorated simply.

24. Your children are very compassionate people.

25. You are grateful for simple and small things in your life.

I believe in you. I believe you can make miracles happen. And I believe that peace (true inner peace) is the answer.

How do you finish this sentence? You know you have chronic illness when.... Share on X

Thank you Megan for sharing this with us 🙂 – Julie


Megan HastingsMegan’s Bio:  I am a mother to three and a devotee to my best friend. I have a sincere desire to share my story in hopes it can help others find comfort and peace.

People who know me describe me as honest, compassionate, confident, outgoing, loving, proactive and assertive. I am an outgoing introvert who loves to spend time at home reading, writing, and cuddling my loved ones. I love yoga, nature and my family. You can reach Megan via email or visit her new blog.

 

Related Posts:

  • 10 Things people with fibromyalgia need to know
  • Four Things About Chronic Illness My Family Needed To Know
  • Tips for Pacing When You Have Chronic Illness
  • Handling the daily challenges of being a parent with chronic illness

Leave a Comment Filed Under: Coping, Extra Spoons

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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