Below is a guest post from Adam (aka TheFibroGuy). He is working hard to create a Fibro Awareness DVD with the help of Fibromyalgia Action UK, and he needs our help.
The invisible monster…
For those of you that are aware of me, thefibroguy, I’ve recently been in talks with Fibromyalgia Action UK to produce a DVD to raise more awareness for Fibromyalgia, as well as other chronic pain/fatigue syndromes such as ME and Ehlers-Danlos.
I’ve had the final contract through and we have the go ahead! This is such great news for the fibromyalgia community as a large percentage of the profits raised from this venture will be returned to the charity – Fibro Action UK, in the hopes of it becoming self-sustaining.
The DVD will follow my journey of chronic pain. Following an IED blast whilst serving in Afghanistan I was severely injured leaving me with extensive scarring on my cervical vertebrae. Since the accident I’ve also suffered regular, debilitating cluster migraines.
It’s through my own journey of desperately trying to find a remedy that I developed a pain management routine that, over the years, I’ve applied to alleviate symptoms of syndromes and medical conditions, and improve the quality of life for myself and others.
This is not to be a video of my journey or my recovery, but a video sharing all of our stories. In addition to my journey, it will follow the journeys of other people, as well as share expert testimony into the conditions themselves from leading experts and researchers in the field. Alongside this, we want to call upon the Fibro and chronic pain/fatigue community to share their stories, as well.
We are asking the brave people of the community to submit short (2-5 minutes long), home videos about their condition and their journey. They can be about whatever you’d like them to be – your condition and what it means to you, symptoms, your definition of what it is (as there’s a massive lack of understanding), the good and bad (maybe a lengthy diagnosis or an amazing support group) or how it’s affected your life as a whole. These can be done as creatively as you’d like and ALL videos submitted will be featured in the final cut – this is my promise to you!
My goal is to give those who are brave enough and willing to share their stories a platform to do so. We don’t want this to be just another documentary of one person’s story, but a documentary that shares all of our stories. We need your videos now, the cut-off for submitting videos is October 31, 2015.
If you are interested in taking part please contact me via www.thefibroguy.com or email the project support on: Seren.bratton@thefibroguy.com
Follow the journey of making this documentary on www.thefibroguy.com – check out Day 1 here.
Eleanor says
This is fantastic I have several illnesses along with fibro, life is a constant struggle. My FM was triggered when my mum died 18 years ago. Nobody in my family understands. Good luck