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You are here: Home / Extra Spoons / Sunday Inspiration: What do you expect from a doctor

Sunday Inspiration: What do you expect from a doctor

Last Updated: February 8, 2015

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

This week I read a post from Sue Ingbretson asking what you expect when you visit your doctor, more specifically What Rx Do you Expect from a Doctor? As her posts often do, this question got me thinking and I decided I would share my thoughts here (because that’s what Sunday Inspiration is for).

What do you want from your doctor?

I get frustrated when I visit the doctor, OFTEN! And they often get frustrated with me. As Sue points out in her post 2/3 of dr visits end with a prescription being written (statistic provided by recallcenter.com). I’m tired of the standard prescriptions. I’m tired of doctors throwing prescriptions at me to cover up symptoms instead of trying to find the root of the problem and FIX it!

What do I expect when I visit a doctor? Not much…

  • I want compassion – I want them to care about me and what I’m going through. They can’t empathize with me because they aren’t in this same trench I live in. They don’t feel my pain, so they can’t really empathize, but they can have compassion. They can treat me like I’m a real person who really is suffering. They can acknowledge my symptoms when I lay them out and treat them as if they are real problems that I have a right to complain about and seek answers for.
  • I want answers – I know this is often asking for a bit much when you live with multiple chronic illnesses that have no distinct treatments or cure. But, I still want them. If my doctor thinks that all these symptoms I’m reporting might relate to one key thing (IBS, urinary incontinence, pain, etc all may relate to small fiber neuropathy) then tell me that they think that’s likely and follow that up with the option to test for said link. I have a post coming soon about small fiber neuropathy and how many things it links, as well as the potential that it may be at the root for many Fibro patients. That said, don’t just shrug me off with a “it’s all just Fibro” when you have no answer for Fibro.
  • I want options – Don’t’ just throw a pill at me. How about prescriptions for alternative therapies? How about suggestions of things that I can personally do to improve my situation. And for that matter, if you are going to give me a prescription I still want options. I want to know what the options are for treating the symptom and have a real discussion with you about the pros and cons of each.
  • I want to work with you – continuing from the discussions above I want us to work together to find answers. I am happy to do research and find options, but I need you to be willing to discuss what I find in an honest way.
  • I don’t want you to give up – when you give up I can tell. When you give up I move on and find a new dr that has a fresh point of view and might be able to give me new treatment options and new answers. When you give up on me, I will give up on you.

I’ve walked out of so many doctors feeling completely at a loss. I went in hoping they’d have answers and they gave me nothing. They looked right through me as if I wasn’t there, and treated me as if I were less than human. They sent me away with prescriptions and no explanation for how to follow-up or use the prescription (thank goodness for the pharmacist). They sent me away without answers or any hope of getting any. They tried one or two treatments and then just gave up. I know what I want and need, and I know that when I walk in with that in the forefront of my mind I’m much more likely to leave feeling satisfied. Granted, there are some doctors you just can’t help, because you can’t fix stupid, but the better prepared I am the better the whole situation ends.

5 Comments Filed Under: Extra Spoons, Treatment Tagged With: asking for help, dealing with doctors, doctors, sunday inspiration

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Sue says

    February 9, 2015 at 7:37 pm

    Thanks so much for sharing the wonderful post, Julie. Your points are thorough, honest, and real. I’m certain that your entire community can relate!

    Reply
    • Julie says

      February 11, 2015 at 11:12 am

      Thank you for always being such a wonderful source of inspiration.

      Reply
  2. Sue says

    February 8, 2015 at 7:50 pm

    I agree with everything you said. I want a doctor who is up to date on the latest fibro research and treats the whole person instead handing out prescriptions that only masks the symptoms and often makes things worse.

    Reply
    • Julie says

      February 8, 2015 at 8:42 pm

      Ah yes, treating the whole body/person rather than just a part. That is a huge issue. Oh and communication between doctors, that’s another thing that should be on my list!

      Reply
  3. Robin says

    February 8, 2015 at 7:23 pm

    I expect to be treated like human being with feelings and intelligence.
    I expect to be looked in the eye.
    I expect that the doctor understands that my time is valuable too.
    I expect honesty.

    I’m fed up with doctors that don’t have compassion. Or a bedside manner!

    Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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