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You are here: Home / relationships / Fibro and Marriage / Sunday Inspiration: Chronic Illness and Friendships

Sunday Inspiration: Chronic Illness and Friendships

Last Updated: August 31, 2014

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

friendships and chronic illness

Chronic Marriage is one of my favorite blogs to follow. It’s one of only two (that I know of) that focus on what it’s like to deal with chronic illness within a marriage. Not long ago she shared a post about “Why Friendships are Important to Your Marriage“. There were a couple of statements she made that really caught my attention.

“When we live with chronic illness, many of us tend to pull back and isolate ourselves. While resting and giving ourselves time to recover from pain is important, so is not making isolation a way of life.

Too many times though, we’re convinced we make for lousy company and that we’re better off alone; alone that is except for the company of our spouse. “

Yup. That about covers it. Honestly, there are times that I would pull back and isolate myself even from my spouse. The only reason I allowed his company was because he lives here. Even so, during my worst days there were so many nights where he’d come home and I’d tell him he should really go out and play pool, or do something, anything so that he did not have to be here, looking at me, worrying about me. I didn’t want people asking me how I was (I was tired of giving the same answers), touching me (that hurt), or worrying about me. At least I didn’t want to have to think about them worrying about me.

[socialpug_tweet tweet=”#Spoonie Do you worry about losing friends to your chronic illness?” display_tweet=”Do you worry about losing friends to your chronic illness?”]

The truth was that I needed him, but I needed others, too. Unfortunately, I didn’t really have anyone I felt like I could call on to be there for me in the way that I needed. I felt like anyone that was around would just be negatively affected by how I looked and felt, and that would just make me feel worse. There were a few times where my mom came over and just sat with me and watched TV, just held me (when she could). But, that made me feel bad (guilty), too. Because, I was making her hurt, and she had enough on her plate already.

Once I improved enough that I felt like getting out occasionally, I finally did reach out to a couple of friends. One or two were great and I could sit and talk to them. They were ill, too. And we could talk about our illnesses, or random life, or nothing at all. There were others that I realized I didn’t need to spend time around, because their negativity affected me negatively. I found that I had new priorities in choosing friends. That it’s important to choose them wisely. But, most importantly, I found that spending time with good friends makes a huge different in how I feel. I need that time with friends to recharge, to feel better mentally and emotionally. I need that connection with someone other than my husband and my mom (who is one of my best friends). We all need that. Social media gives us some of that, and allows us to make friends with people we will never meet in person. But, there is something different about one on one social time with real friends in person. It provides us with a connection to the world (and to ourselves) that we can’t get in any other way. These days I have a few more friends that I know I can call on when I need someone to talk to, or just someone to spend time with (and I hope they know that I will be there for them, as well). I don’t spend as much time with them all as I would like, but I try to spend time with friends at least once a week.

What about you? Have you had to adjust some of your friendships due to chronic illness? Do you make time for a few solid friends?

[socialpug_tweet tweet=”#Spoonie how important is time with friends to your mental / physical health?” display_tweet=”How important is time with friends to your mental / physical health?”]

2 Comments Filed Under: Fibro and Marriage, friendship, inspiration, relationships

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Tracy Lee Karner says

    August 31, 2014 at 10:41 am

    FMS completely changed my priorities regarding friendships. I simply don’t spend time with people who effect me negatively; and I’ve gotten ruthless about it. I’m not impolite, but I’m strong in my refusal.

    This is a complete and total turn-around for me. Before FMS, I felt obligated to spend time with anyone who wanted my time. Now I see that friendship has to have mutuality and equality, otherwise the relationship is something other than friendship.

    Reply
    • Julie says

      August 31, 2014 at 12:10 pm

      I didn’t have a lot of friends when I was younger, so I was a lot more willing to accept those who would accept me. Then I realized that one of my “best” friends throughout school was a fair-weather friend who only called me when she didn’t have someone “better” to call on. That was the end for me. The older I’ve gotten the more I’ve realized that it doesn’t matter how many friends I have but it does matter that it’s mutual and that we both put forth the same amount of effort towards an equal relationship.

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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