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You are here: Home / Conditions / Fibromyalgia / My Fibromyalgia Speech: What is Fibromyalgia?

My Fibromyalgia Speech: What is Fibromyalgia?

Last Updated: July 22, 2014

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

As promised, here’s the video of my Fibromyalgia speech. Heads up, turn the volume down.

I have no idea how I got even close to an A on this (I got a B+). I’m actually a little embarrassed to even share this. Today, I’ll be giving my second speech, this time on a project I was involved in over the last few years – The Painted Bra Art Project. This is my persuasive speech. I’ll have one more speech next week and then I’m done.

I will be so glad to have this mini-session over. Having a class at 8am is killing me. Class was cancelled one day last week and I was so happy because I woke up feeling like crap. It was one of those days that I was considering skipping before I saw the notice that it’d been cancelled. My weekends lately I’ve spent just trying to rest, and I’ve done my best to try to “take naps” in the afternoon. I suck at naps. At best I can lay on my hammock for a half hour and just relax, but fall asleep? Heck, NO! Like I said in the video, without Ambien there’s no way I’d be getting through this month.

I tried to tell Paul how worn out I am. Of course, he went straight into “fix it” mode and said “Well, maybe you should try to get to sleep earlier.” Note: I’ve been hitting the bath tub shortly after 8pm and in bed by shortly after 9pm every night (popping an Ambien as soon as I hit the bed, then reading till it kicks in). I pointed out that in order for me to get the same amount of sleep that I normally get (the amount my body needs) I’d have to be in bed by 7pm. Even if that was realistic under normal circumstances, it’s impossible two nights a week due to my other class. At that point he shut up and switched to smart husband mode and asked if there was anything he could do. There isn’t, but I appreciated the effort.

Two more weeks and I’ll be done. Then three weeks off before fall starts. On the upside, this one mini-session class is like taking three normal semester classes, so I know I can handle my fall schedule.

2 Comments Filed Under: Fibromyalgia Tagged With: diagnosis, school

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Tracy Lee Karner says

    July 22, 2014 at 8:28 am

    I understand your nap dilemma. I, too, have a difficult time winding down, especially when I’m studying/learning or writing a book–too much on my mind.

    Two tricks that helped me: a neurologist told me to do cardio 4-5 hours before times I wanted to sleep. He said my body would be exhausted 4-5 hours after the cardio. Even 10 minutes seems to work.

    And, I made up this game. A number of people have told me it works for them, too. The bonus is, it grows brain cells AND makes you fall asleep. http://tracyleekarner.com/2012/11/21/how-to-grow-brain-cells/

    Reply
    • Julie says

      July 22, 2014 at 10:57 am

      That’s pretty cool.. I will definitely have to give that a try, next time I’m laying there trying to dose off. I wanted a nap so bad yesterday afternoon. I actually laid down with the intent of taking one before my evening class only to have a friend call. It was not meant to be. So, I was in bed by 8:30 last night and still woke up dead. The nerves of today’s speech gave me the energy to get through it, but now I am ready for that nap.

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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