Fibromyalgia Nerve Pain
There may be more to it than you think
Nerve pain is a part of fibromyalgia. Fibromyalgia nerve pain is usually caused by over-active nerves. What we may not realize is how many other problems that those over-active nerves might be causing. I didn’t even realize that most of my issues were nerve related until I finally thought to bring the specifics up to my doctor.
I had what I kept describing as “nerve spasms”, however once I looked them up I realized they weren’t so much “spasms” but twitches. We usually see the effects of these twitches in our limbs but what we may not realize is how much we are experiencing them throughout our entire body. That said, I do get spasms too, now that I realize the difference. Spasms are we typically refer to as cramps. I get those most often in my legs. I have found that stretching and increasing my Magnesium intake (both orally and via epsom salt baths) helps, but does not always completely alleviate this issue.
A twitch is when your nerve misfires or over-fires and causes a muscle to twitch. Sometimes you’ll feel it in an arm where it might feel like a muscle is jumping around for no reason. For me, when it gets really bad it feels like just constant ripples of movement through my muscles, it sometimes actually causes my limbs to jerk, similar to Parkinsons. It can cause me to drop things, it can cause me to fall. It definitely makes me feel weak and tired from the constant uncontrolled movement.
If you think about it, it makes sense that if your nerves are causing your external muscles to have this type of movement, perhaps they are causing the same movements internally. When my twitching was at its worst (before I started taking Neurontin to help it) I had a few days where I just laid on the couch because the twitching was constant. But, there were some other issues that I noticed seemed extremely worse during those days.
Fibromyalgia nerve pain can cause other issues as well
1.Acid Reflux. I’ve had ulcers in the past caused by too much NSAID use. However, after that was taken care of the acid reflux subsided greatly so that I didn’t need medication for it. What I’ve found is that when the nerve twitching is the worst, acid reflux gets worse. Acid reflux got so bad at one point (despite taking a daily prescription medication), that I really thought I’d managed to develop another ulcer.
2. IBS. This is one that is commonly associated with Fibro and I can’t help but think this might be connected to the nerve issues. I’ve dealt with IBS to some degree for years. But, it’s rarely so bad that it causes me great pain. Typically, I’m just dealing with irregularity and sometimes gas and/or cramps. But, during those days when the nerve twitches were the worst, the IBS pain was also much worse and other IBS symptoms increased as well (usually resulting in diarrhea).
3. Urinary Incontinence. This one went beyond just the worst days of the nerve issues. It was something that I was starting to think was a serious problem. I didn’t connect it to the nerve problems until after it cleared up… which was after I started taking Neurontin and the nerve twitches started getting better. I began having leakage issues around the same time that the nerve pain and twitches started. Getting to the bathroom on time just didn’t happen. I spoke to my gyno about this issue and was told to start doing kegal exercises to strengthen my muscles in that area. I was eventually sent for physical therapy as well, but neither helped. Calming my nerves, keeping my diet under control, and PEMF helped.
Gabapentin has continued to keep my nerves calmed. I’ve also found that taking magnesium daily helps keep the twitches and spasms to a minimum and reduces the other symptoms related to fibromyalgia nerve pain.
At least with the new criteria for Fibromyalgia they are starting to consider more of the various symptoms we encounter even if they aren’t quite realizing that they are all from the same basic cause. I may not be a dr but it just makes sense to me.
There might be more to fibromyalgia nerve pain than you think. Share on X
What other symptoms do you experience that you think can be linked back to the basics of Fibro?
Judy says
I am 83 years old. And don’t let anyone tell you it gets better with age. It doesn’t.
i have had fibro as long as I can remember. I to was given a list of 73 symptoms when I was diagnosed and I had 68 out of the 73. My worst symptoms are chronic fatigue syndrome,wrestless legs , migraine headaches. I have acid reflux so bad I don’t have much lining left in my esophagus. The esophagus no longer works and they think it’s trying to close up. I have the twitching in all my muscles as well. All the body aches and pain. A long time ago I was given Valium because I was going thru some personal problems. I discovered that it quieted some of the twitching that I had as well as some of the stomach issues. When I told my Dr he was not surprised he told me it’s a muscle relaxer. I take a very low dose and though it’s not the answer to all my problems it certainly has helped ease some of them.
Sherri says
Thank you for making the connections! I have had Restless Leg (arms) syndrome since I was a young child; I’m 62 now. I was diagnosed with Fibro in 2010. My legs have gotten way worse; I didn’t connect to Fibro. My incontinence I attributed to age and hysterectomy. I also have Hashimotos (thyroid). It feels like it’s all connected. I was on Gabapentin for several years for fibro and RLS; it made me more miserable than I already was, so I quit it. I can’t take pain meds; I’m useless if I’m on them; I had to choose being in pain or being awake. I also have long covid, plus a bad reaction to the shot that still affects me. I’m pretty miserable to be honest, but I take one day at a time, and push myself.
Cheryl says
Does fibro cause acid reflex? With a sore throat? Burning tongue? Does anyone have any help for very bad allergies? I cannot use allergy medication. I use a nedi pot, get allergy shots and take berberine and try to eat apples and onions. I read an article that had a list of 60 symptoms of fibro, I have about 40 of them. I get it and my heart goes out to you all that are suffering. There are 2 things that have helped me:
1) I turn to the Great Physican, Jesus, for healing, patience, strength. 2. I get terrible pain in my hips that wakes me up at night. When that happened, I’d go through my stretching routine but that no longer works. He put upon me to make a fist and put it under my hip and let it rest where it hurt. It hurt pretty bad, but it forced my muscle to relax, and the pain subsided. I then did it to the other hip. Last night I did this routine before I went to bed (it didn’t hurt as much as before) and I wasn’t awakened by pain. I feel so much better this morning after getting better sleep. I am going to make this part of my routine morning and night. It’s better than taking meds that only add side effects. I keep my eyes on things above and I look forward to my new body.
Pamela says
I was diagnosed around 1994(ish).
Aside from pain, I have found that the other senses are equally affected. Light, smells, sounds can all be painful to me. I have learned to carry ear plugs, especially when I attend events such as concerts. Some scents feel like they are burning the hairs right out of my nose. Light, well, sun glasses help.
Touch, even the lightest, can be painful. I can no longer endure a massage as it causes so much pain. Labels on clothing, bras, and layers of clothing. I keep clothing to a bare minimum.
When asked, I describe my overall pain as if every pain centre in the brain is screaming as loud as possible.
My twitching stopped with medication. Cramped muscles are just a part of life.
I also suffer with anxiety, sometimes crippling, and depression, sometimes suffocating. So… Yaaaaay for me.
mary says
I have Fibro & have had urinary incontinence for years. I went to a chiropractor for pain issues & in the process I was told to stop drinking diet sodas. When I stopped them my bladder stopped leaking almost completely. The only soda without whatever ingredient that causes leaking is zevia.
Heidi says
Hi. I’m Heidi. I’m new here but not from day-to-day challenges.
I wanted to just share that a spasm to me is like a shocking lightning pain. A doctor doesn’t recognize my description but when I say spasm I seem to be understood.
A doctor once said, “when my back goes out” to me and I immediately wanted him to explain what he meant because I knew that phrase very well but my doctors never had.
The worst twitch I’ve had was in my neck. It jerked my head. It was more irritating than painful.
I find my tolerance lowers as anything starts to compile. Like 1 or 2 issues are manageable but add a 3rd or 4th and I’m down.
Thanks for listening.
Julie says
The words we use to describe our pain and experiences matter so much. The more descriptive we can be the better, especially when communicating with our doctors.
Jo Dainow says
Hi Julie
I am a long haul Covid-19 sufferer. A lot of is are suffering with body pains, often one sides, just in the calf or the arm or tingling in our back or head. I always though fibro was distributed equally across the body. Could it be one sided and specific to different areas? Thanks Jo
Julie says
The locations of pain for fibro seem to vary a lot, but it is defined as widespread (which means that there would be pain in all four major quandrants of the body). That said, most of us find that we notice pain in some areas much more than others – usually we’ll find that once we get what we feel is the “worst” pain under control that when we notice that there’s seemingly just as much pain in another area (it was just masked because our focus was elsewhere). That said, I’ve been reading a lot about Covid ad the potential for long-term issues that are very similar to fibromyalgia and/or ME (with on-going persistent pain and fatigue). I’m so sorry you are going through that.
Leslie says
Everything you said was right on with me, too. It feels reassuring to be validated. Thank you
Tina says
Omg I have so many things wrong with me that it would take all day to explain!,but the fibromyalgia is the worse!! Every day I’m in so much pain and I’m on major pain meds so you would think I would have no pain at all but that’s far from the truth!! By 4 in the afternoon I’m praying to just let me make it thru supper and I’ll lay down!! But all day the pain increases and now all I do is sit and read and research in hopes that I find something new to try!! Anyway just needed to vent I guess with someone who knows how I feel so Thanks for listening!
Julie says
If you’ve not tried it I’d highly suggest trying CBD oil – especially a topical product in the areas where you are hurting to see if it could help reduce some of the pain. I totally get it, the pain can be awful. I hope you find some relief.
Judy says
CBD helps me a great deal with muscle pain,
Vachela says
Hi,
Has anyone experienced the nerve twitching or tremor like symptoms in their head? I’ve been diagnosed with mixed connective tissue disorder but I dont feel like most my symptoms match. Thinking it could possibly be an overlap of the two. God bless you all and may he grant us comfort on our hardest days.
Julie says
In your head, like on your face/head, or in your head like in your brain?
Tee says
I feel it’s a constriction of blood vessels, especially in brain, cause stroke like symptoms. Ddoctors are ridiculous here, it’s a battle for me.
Ma Wilson says
Hello Vachela and fellow Warriors. Yes, very odd sensations can happen in the fibro head as well as as the body in general. My own company of twitches includes a rippling “twang” which passes painlessly but distractingly from side to side of my skull, right through the inside.
My neurologist had no knowledge of this symptom, but his nurse assistant had heard of it from earlier fibromyalgia patients.
It feels very odd, and mostly prevails when I am fatigued, and other twitches and tremors strike up in accompaniment.
Best wishes.
Julie says
I know the twang you are talking about. I’ve noticed it’s worse with certain medications that I’ve taken.
Vanessa Guyette says
I feel for all of you. I am sixty and first began to have chronic fatigue in my mid to late thirties. I am hyper mobile too and that led to overuse problems in my career and being forced to change and begin teaching in my field. I also had a fall from a treadmill around that time and it caused a chronic pain problem from damage to my SI joint. My fibromyalgia only became worse after that. I found a doctor who claimed to treat fibromyalgia and that wasn’t so easy at that time. It still isn’t easy. The problem was all of the medications he switched me from over almost a year that finally caused enough damage that I lost some memories and interfered with my work. I knew then I had to stop it all and I did but about 5 weeks later had a near fatal car accident that I believe was in part due to those medications. I was in a coma for several days and injured severely. It led to disabilities I still suffer and awful chronic pain to go with the fibro. My family has so many members with fibromyalgia but also other immune diseases. I still think we need so much more research to understand fibromyalgia and other similar diseases. I do think it is related to the brain and nervous system but my only warning is to be so careful about any medication that is suggested. No medication comes without side effects and sometimes great damage which causes even greater problems. Prayers that we all know a cure in our lifetime. I have a daughter who is 33 and has been diagnosed since her mid twenties. There is so much more we need to know. I wish that for us all, but especially those who seem to be affected at even younger ages now.
Julie says
I agree on all points. More and more research is pointing towards fibromyalgia being neurological. I’ve also found more harm from the medication side effects than help. They aren’t all bad and have their place but require research on our part and awareness – sadly something we often barely have when we are dealing with the worst of these illnesses.
Ingrid Maier says
This is the first time I reply to a Fibro-Report, because it is so actual and includes almost everything I have experienced since I have been diagnosed with Fibro 19 years ago (after searching for about 10 years for the reasons of my health problems with all the pain). In those 10 years I was laughed at and no doctor knew anything about Fibro, for them I was a patient for the psychiatrist. But back then, the effects were not quite as extreme as they are today.
After the rheumatologist made the diagnosis of Fibromyalgia, the first medication was Amitryptilyn, which I took for years completely for nothing, the only thing that “worked” was the side effects. I tried to find another doctor, but there wasn’t anybody who knew something about the right treatment and they still kept telling me to visit a psychiatrist.
Unfortunately, I also have a very severe osteoporosis, which has already caused 2 lumbar vertebra fractures, multiple herniated discs, and a migraine since I am 15 years old. So all the good advice to improve the Fibro, like a lot of sports and exercise are not feasible because of the other diagnosis. But I still have tried everything else I could and have read about by myself.
The Fibro just got worse and worse over the years, I just found myself in the video with every single issue, every feeling, every pain. I stopped taking Amitryptilyn and at least the side effects were gone too. A pain therapist where I was sent to 5 years ago started giving me Lyrica and morphine and the pain went down to a just bearable level on about 50% of the time, but it was more the back pain from the other diagnosis as from the Fibro pain.
Getting up every morning is like hell for the first 2-3 hours, sometimes I just don’t want to go on anymore. On some days the pain even goes on all day through and I need help for the simplest things, like going to the bathroom.
The “worst” part are those “good friends” with their ‘oh so good advices’, most of them have NO idea what it’s like and can’t understand or imagine what I feel. I even lost a few because sometimes I could not keep an appointment, but I’m up to that point, I don’t care about people like that anymore.
As you all maybe can imagine, in all those long years I have really tried everything, but nothing works for me. So I have to live with this crap, if I like it or not.
(Sorry for any spelling mistakes or bad english, I am from Germany.)
Marie says
I lost friends because of the pain. I gave up saying that I have a headache! Nobody can do anything about it. I am so grateful for my husband! He is always trying to stop me from going to far and being sore for days. I am very creative and just hate the times when I really can do nothing. The pain id just unbearable! Give yourself permission to take things slower! It does help.
Marie Owen
Mary says
I have T1D and Fibro. My most recent flare up is in my groin, started on the right upper side of my leg almost to my “hooohaw” feels like pulled muscle (it’s not) now it is on the left. I can’t lift my foot to put on shoes , clothing etc. The right has been over 2 mos. Very painful. This is my first time writing anything, anywhere online. Nice to see others who can relate, although I hate to imagine anyone with this all over achy burn. Thanks for listening. Can anyone related?
Julie says
Wow. Mary, that sounds awful. I’ve had similar on one side but both sides I can’t imagine.
Mary says
Well I can’t believe you actually responded I have never done anything like this but it is interesting I argued with my doctor for almost two years that I didn’t have fibromyalgia I thought it was just arthritis but the pain of my cat just jumping across my legs and feeling like a hot poker has got me anyhow I have been off work for 4 months now and I believe I’m going to have to file for long term disability have been on short term disability any advice you can give me in doing this? I’ve worked my whole life I’m only 52 but I just don’t think there’s a way I can never go back to work once again thanks for listening and it’s nice to have a forum or an outlet to discuss . My family is wonderful thankfully I have a strong faith and know that it won’t always be this way but just realizing that I really do hurt and I really can’t bend down her get on a step stool without using myself as a reality is something I’ve had a difficult time adjusting but reading your forum and the many others who have much worse than I do , including yourself. I thought dealing with juvenile diabetes would be a big enough challenge in life, wearing an insulin pump, I am in fairly good control there, but nowthis.
thanks again
Julie says
I don’t have direct experience with filing for disability but what I can tell you from all that I’ve heard from others is to get a lawyer before you file. They will help you make sure you have all the right paperwork and get everything from doctors, etc. Also, while the likelihood of being denied initially is VERY high lawyer or not, it’s a little lower with a lawyer and they will fight your appeal and have a much higher success rate than going it on your own.
J says
I’m so sorry for all your pain .And I’ve been on Disability since 2010,and since then I have been dignosed with by polar and. Fibromyalgia .My advice is to start with a Couslor she can help get the disability papers and she will help u fill them out .Then go from there good luck
Ruth says
Mary, you mention an achy burn and hot poker feeling. Have you seen any doctor to see if you might also have CRPS? I have both fibromyalgia and CRPS, and honestly the pain and burning of CRPS is worse to deal with for me. Even more difficult is finding help for CRPS. Good luck with your benefits.
Tina says
I also have both. The crps is far worse but the both together is terrible
Heidi says
I have direct experience with information related to Social Security Disability in the U.S.
I worked with an attorney after my 1st denial.
There are 2 types. SSDI is for people who have worked 5 out of the last 10 years. I’ve been disabled and unable to work longer than that. There may be more requirements, I’m just immediately cut off there.
The 2nd is SSI and is a welfare based program. You do not qualify if you or your spouse have more than $2,000 in assets.
My husband has been unemployed for 10 months now. But he has a very small 401k that is an asset over $2,000.
I don’t qualify for any disability or medical care under those guidelines.
I hope this helps anyone.
Jane Phillips says
I had that same pain, on my right side, for which I was eventually scheduled for hernia repair. Just a few days before surgery, I developed the same pain on my left side. I talked to my surgeon; he said he would check the left side while he was, “in there,” and would fix it if he found something, but if he scheduled both sides, I would be charged for surgery on the left, even if he didn’t find a hernia. I awoke to find he put mesh patches on both sides. Sounded great, until The. Very. Same. Pain returned on both sides. I eventually saw a chiropractor who showed me a stretch; the pain went away, on both sides. It sometimes reappears, but the same stretch takes care of it. People in pain are easily led astray; we just want relief.
Julie says
I often feel like the pain I have is like I’m getting stabbed by a rib, and getting to a chiro often does help. I recently found out from my latest chiro that I have an extra vertabrae and I can’t help but wonder if that causes things to shift sometimes in a way that causes that pain.
Milisia says
Jane, I have terrible rib pain. Can you describe the stretch that helped you feel better? Thanks.
Milisiad@yahoo.com
melissa says
My fibro seems to be in a remission type thing .I am not as tired,I am sleeping better.My pain is still here but not as intense,I still the electric shock pain,muscle aches,swelling in my elbows, headaches,back pain,and sometimes it is hard to hold my bladder.Even with all this ,I feel better,
Julie says
That’s great to hear that you are feeling better. Can you pinpoint anything you are doing differently that might help you continue to improve?
Shelia says
As I’m reading this, I am lying here having nerve pain practically all over my body. It is especially raging in my legs and feet. Lyrica and pain meds are not helping at all. Must be the snow coming in. Along with the pain, my feet feel like their numb and tingling. Elbows are swollen. They swell up for no reason and then the next thing I know they are normal size. I had a twitching eyelid through all of the holidays. It drove me crazy. But I think it left town for now. Then a few weeks ago, my right arm starting jumping. You could see it across the room. I read about the magnesium and it has finally lightened up. Just wish they would find a cure. I get so discouraged. I don’t know anyone with it that lives close that I could talk to. Would love to just talk to someone that “got it” and really listen. So i just keep it in. I’m 48 years old and I was diagnosed with fibro almost 10 years ago. I have tried all the meds for fibro and currently on lyrica. I’ve tried physical therapy, acupuncture, chiro, massage etc. Actually chiro and massage seem to work some but I’m currently not doing anything like that. Winter is the worst for me. I would love to move to a warmer area. I just found your website. Thank you for putting alot of information in one place. Well, I’ve said enough. Hopefully I can get some rest soon. Soft hugs!
Julie says
Your symptoms sound so much like mine in the first couple of years after I was diagnosed. Magnesium helped me a lot with the twitching and muscle pain. Diet has helped me more than anything with controlling the pain. The only thing I’ve found that helps the burning / tingling in the feet is CBD oil muscle rub from The Fay Farm.
Redonna says
What diet works best for you? I am in so much pain and still trying to work because I have to! My doctor acts like fibromyalgia is just “in your head” and you just have to lose weight. I gained weight because I am in too much pain to work out to lose weight. Just washing our dog makes me feel like I need to stay in the bed for two days to recover! I don’t know what to do anymore. I don’t know what kind of doctor to go to… to get real help and real answers. My doctor doesn’t even really test me for anything or see if it’s something else. I am just so scared! And in so much pain!
Julie says
The best thing I’ve found, for me, was cutting out gluten, eggs, & dairy- primarily gluten, and focusing on eating a whole foods diet- avoiding processed foods and eating foods from the outside edges of the grocery store. There’s so much crud in the boxed and processed foods that will weigh you down. I also juiced a lot when I first started (I need to get back to that) and it really helped me get transitioned to eating clean and helped me get the junk out of my body and replace it with good nutrients (I think that helped speed things up for me). In addition to feeling so much better I also lost about 30lbs without trying.
Laura says
i love reading the info shared on your blog. Thank you. I also have issues with anxiety. I feel very self conscious. I think bc in the beginning I was sent from one dr to the next and finally after #17 I just stopped. The info about the twitching was great!!! So much that applies to so many people. I don’t think it’s just the patients (us) learning something new everyday.
Julie says
I believe you are right. Even a doctor can’t know everything about Fibro. There are new studies constantly, and we are all unique with different overlapping issues that affect it. It’s important that we do our own research and share that with our doctors so that we can work together. I can definitely understand why you would have given up on finding a decent doctor after so many.
Mary says
Hello i think sometimes doctors think we are overreacting, and panicking unnecessarily when we have every right to get ourselves in a state sometimes and cry. If your in chronic pain almost all the time, spend almost all days in bed, maybe forcing yourself to get up each day because you have been told to by your doctor just for a few hours to prevent blood clots in legs (thrombosis).
I have all the conditions you have mentioned plus arthritis badly in my fingers and back it is causing my subluxation in my thumbs and the detestation in my wrists is bad so I have to wear splints almost all the time, on some of my fingers at night ( it’s uncomfortable) but does elevate the pain in the daytime. I am hyper mobile too
So have subluxation problems in other joints too.
I have had nerve pain all my life from early childhood, but only got a diagnosis in my 40’s and finally medication to help with the pain it was wonderful when I had my first dose nerve pain meds I cried the relief after all my life , well I couldn’t put it into words.
Thank you for your blog.
Marla says
Mary, have you heard of Ehlers-Danlos Syndromes? There is a good chance you have the hypermobile type. Once you read about it it may answer a lot of things you have been going through. I am not a doctor, but I urge to check out the Ehlers-Danlos Society web pages. Don’t panic when you see “vascular” type. It is very rare. Most people have hypermobile or classic. EDS is not as rare as they make it seem. It is just rarely diagnosed. I don’t know where you are from, but it will be a monumental task getting dx’d. You will find that there are almost no doctors willing to even entertain that you may have it as they are given almost no training in med school about it. EDS is a genetic condition and there is unfortunately no test for the hypermobile type. I also suggest you check out the Beighton scale as a precursory test. If this sounds like you, there are many (private)FB groups that are a treasure trove of information and support. Best of luck in your fight and gentle hugs.
marilyn hobbs says
I have to use a mobility scooter most of the time(95^). although I drive I know find that exhausting and causes me arm pain and leg pain so that’s not a lot of good. The most frustrating thing of all is people saying you can do it if you try or you are depressed. But I am still here and intend to do what I can do when I can do it. good luck for the future marilyn
Rochelle Daniel says
I have them so bad I can’t sleep. I have seen 2 neurologist and they both said it was psychological. Yeah right so it happens when I am sleeping too.
Julie says
What do you mean by “them” spasms? or something else? If you are talking spasms I’d seek out a rheumatologist rather than a neurologist. It seems like neuros should be the ones treating Fibro (as more and more evidence is linking it to nerve issues) but Rheumatologists are the only ones that seems to get it (if they even do).
Dawn says
Tumeric pills. yes, the spice. In pill form. It was prescribed by my Dr. twice a day. It took about 2 months to build up in my system but have been able to back off my pain pills a lot. Also found I was very mineral deprived and take a multi mineral pill by usana co. which has helped a lot. I was rather severe with myofacial and twitches. also couldn’t hardly walk. am doing much better than 3 years ago but it has taken time. This is just a small piece of my regiment but I hope it helps someone else too.
Julie says
Yes! I found Tumeric last year and love it. It was the only thing that helped when I screwed up my shoulder. I can’t take NSAIDs, but Tumeric is a natural anti-inflammatory that works as well. I usually take a brand called Curamin that has Tumeric and something else in it. Good stuff. Thanks for mentioning that!
Patty says
This makes so much sense to me. FINALLY! I have only rare acid reflux but the rest could have been describing me to a tea!! 50 years of FMS and I’m still learning. Thank you!
Julie says
Once I finally came up with the right term (muscle twitch) to explain it to my Rheumy, he immediately said it was due to the nerve side of Fibro and that the neurontin should help.
Dragonsally says
That’s interesting – I’d never thought to connect my muscle twitches to fibro before. They are a lot worse when I’m tired.
You have me wondering about something else now…when my knees give way, could that be caused by a twitch? Food for thought.
Jason Williams says
As you mentioned Dragonsally, my jerks are worse the more fatigued I am & certainly easily noticed by anyone around me as they are sudden, sharp, large & often continue with the same gap between each jerk!
Also, I walk with two sticks & even then can only walk a very short distance (shopping/a day out etc has to involve a mobility scooter) I fatigue extremely quickly & my legs just buckle at the knees on a daily basis & involving multiple falls. I’ve had major spinal surgeries & even specialist have not known to which the knees giving way is connected too! Not nice for you but good to hear that others suffer similar issues!
Julie says
I’m sorry you are both dealing with these issues so greatly. I find that magnesium does help calm mine a great deal, but there are times when they flare up for no reason (just like Fibro in general). Or, when I’m not sleeping well and my fatigue flares typically so do the spasms and twitches, and IBS, etc.
Jennifer says
Jason i think you should send me a bill lol. I was diagnosed 15+ years ago. For over two years i have been to at least 6 drs, including the mandatory psych. Explaining my extreme muscle jerks none could or seemed to try to comprehend. Ive tried to video myself but mine seem to only happen when i am dozing off knowing the cam is on me lol. My knees have started buckling too the last few months. Every doc says its stress. Not sure what i am so stressed about. Thanks for your post and everyone else.