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You are here: Home / My Life / The whole is more important than in individual part

The whole is more important than in individual part

Last Updated: February 19, 2013

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

I fired my Physical Therapist today. A few weeks ago I posted that the Pelvic Pain specialist I saw recommended that I do physical therapy for the abdominal pain and the vaginal pain I’ve been dealing with for a while. He suggested a particular PT place in my area that does the vaginal work. Evidently they are the only ones that do it here. I asked about Huntsville Pool &; Land, which is where I’ve been going for the last few years. They deal with a lot of Fibro and special needs people and understand us. I’ve been to the place he recommended in the past for my migraines and neck issues and both times they ended up failing me out with no help. He said I could go to HP &L but that I’d probably end up having to go to this other place for a few visits for the vaginal stuff. With that in mind, I decided I’d just give the other place a try and see what happened.

What happened was that they flared up my Fibro. The first visit was insanely painful, but nothing compared to the fourth. In all I saw 3 different therapists at this place. One didn’t really do much and therefore I had no reaction, good or bad, following the visit. Another seemed to help initially but by the time I got to my car I was feeling pain again. The one I saw on the first and fourth visits, however, caused me agony both during the visit and after. During my fourth visit she literally had me in tears and trying to jump off the table to get away from her. Even when I told her no more, she kept going. I woke up the next day in a flare. At that point I knew that if I kept going there my abdominal pain might improve (it was actually pretty good for several days last week), but my Fibro would get worse. The therapist, Bridget, commented at one point that I was really flared up, because I seemed to react no matter where she touched me. At that point, I really wasn’t that bad other than in the abdominal area (IMO), and I told her “If you think I’m flared now, you should have seen me two years ago. You couldn’t have touched me.” That seemed to really shock her and she said that I was the worst she’d seen. It was at that point that I asked her if I’d be better off at HP&L. She kind of agreed that I might be.

In talking to her more today, she clarified that I’m not the worst she’s seen in my current state, but that my report of how bad I’ve been is worse than any other Fibor patient that she’s seen there. She said most of the Fibro patients they see are also doing some sort of water therapy and the worst is usually a 5 on the pain scale. A 5!? Really?! Seriously, if I was just at a 5 I probably wouldn’t even worry about therapy. A 5 I can live with and work through. Even this abdominal pain I can work through and live with, by simply not doing much. Unfortunately, it will spike when I do certain things and therefore it keeps me from living a full life. It was that comment that made me sure that I was making the right decision to have her discharge me. HP&L won’t be able to treat the vaginal pain but even Bridget said she thinks it’s related to the abdominal pain and if we can treat it that the deep vaginal pain would go away. So, there we have it.

In the end she was very nice about the whole thing. She tried to talk me into staying and seeing this other therapist that was going to come over and co-treat me on Thursday. She didn’t really want to accept that her treatment was flaring me up. She seemed stuck on the idea that if it was going to affect me it would be right after (or within just a few hours) rather than where I said I woke up the next day in a flare. I just don’t think she understands what a flare is, that it’s more than just pain. I just couldn’t do it. Even the movements that she had me do today to “measure” if there had been any improvement (for the discharge paperwork) increased my pain.

This isn’t the first time I’ve fired someone that I felt wasn’t helping me. We’ve only got so much time and so much money, we can’t waste it on things that are hurting us. Sometimes, you just have to move on. photo credit: brainware3000 via photopin cc

3 Comments Filed Under: My Life Tagged With: abdominal pain, dealing with doctors, dealing with fibro, decreasing stress, flares, mental health, physical therapy, water therapy

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. Becky says

    February 22, 2013 at 4:52 am

    I agree with the whole “5” thing. I think I live at about a 4 or 5, which is nothing to really complain about compared to when my pain was not controlled and at an 8 or 9! For some, it is so hard to understand what people with Fibromyalgia endure, and what we DON’T complain about!

    Reply
  2. Heather and Kathy says

    February 19, 2013 at 11:21 pm

    a 5? I am with you. A 5 I could function and live with no problem! I think most of us would be happy with just a 5.

    I do hope you find a therapist that can help you! i am in PT too right now for carpal tunnel.

    heather

    Reply
    • Julie says

      February 19, 2013 at 11:49 pm

      Yeah, when she said that I knew she REALLY Didn’t get it! Luckily, I know that HP&L really gets it when it comes to the Fibro stuff. Whether or not they can help this abdominal pain remains to be seen – since no one seems to have any idea what causes it.

      Reply

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About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

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