Counting My Spoons

Inspired Living with Chronic Illness

  • About Julie
    • What’s Helped Me Most
      • ToolKit
      • Vital Plan
      • Oska Pulse
    • Contact Me
    • Work With Me
    • Terms of Service
  • Warriors
  • Coping
    • Tips & Tricks
    • inspiration
  • relationships
    • Fibro and Marriage
    • friendship
  • Conditions
    • Fibromyalgia
      • Fibro Warriors
    • migraine
    • endometriosis
    • Medical Studies
    • Treatment
      • Diet and Nutrition
  • Reading List
  • Toolkit
You are here: Home / Symptoms / I’m Freezing! Or am I just really hot?

I’m Freezing! Or am I just really hot?

Last Updated: December 10, 2010

Welcome! It looks like you might be new here, so I wanted to take a moment to tell you a little about me and my blog. My name is Julie Ryan and I live with Fibromyalgia. I've chosen to live positively, to fight back with diet and lifestyle changes and it's made a huge difference for me. The difference between living all my days in bed, and actually LIVING. I hope you'll keep reading and subscribe to my Newsletter to make sure you don't miss a post. Thanks for visiting!

*BTW, just a heads up that the post below may have affiliate links (some of my posts do).

Welcome back! I'm so glad that you are here again. If you've not already, be sure to subscribe to my Newsletter and I'll update you each time I post (and occasionally I'll send you something special).

Just a heads up that the post below may have affiliate links.

One of the joys of Fibro is a completely screwed up sense of temperature. Add to that all the fun aches and pains and you may not realize for days that you are really sick (at least that’s how it is for me). Yesterday, I spent all day chilled to the bone, aching in every muscle and feeling like I could barely move; but hey, that’s just a bad flare right? It wasn’t until late in the evening that I thought to check my temperature and realized it was over 101. No wonder I was freezing, I was burning up! I didn’t think to check my temperature because I figured it was just a bad day, a bad flare and it seems like I’m always either freezing or burning up. It wasn’t until my husband came home from work and complained it was cold in the house that I thought “maybe it’s not just me” (despite having spent the entire day under a huge pile of blankets).

I can’t tell you how often this has happened to me in the last year. I’m sure it’s happened to you, too, a time or two if you have Fibro (and maybe even if you haven’t). So, how do you know if you are really sick? I don’t have the answer to that and unfortunately, we’ve all, probably, also experienced the joy of being completely disregarded by the medical community. This leaves us in an even worse spot. Unless I have a fever or have been sick for days with something that I know isn’t a Fibro (a sore throat, runny nose, etc) I don’t go to the Dr. I just see it as a waste of time and money. However, the good Drs I have have told me before that that’s not the right attitude to have. If you have something that doesn’t fit your usual “flare” symptoms, it’s best to go to the Dr. It could be something worse, and allowing it to hang out in your system any longer than necessary is likely to just make you worse.

So, I guess the moral of this story is… if you have chills & body aches, check your temperature. There might be more to it than you think. In my case, the fever broke over night. I still feel crappy today, but I don’t have a fever or any other symptoms outside of normal Fibro stuff. Not to mention, all my good Drs are off on Fridays, so it really would take my fever returning to the point it was at least night for me to bother going to a Dr. However, if it does (and I’m keeping an eye on it today), I will go to Urgent Care just to be sure I don’t have the Flu or something else.

3 Comments Filed Under: Symptoms Tagged With: flares, temperature

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness.

Comments

  1. datondra says

    September 9, 2014 at 12:03 pm

    Funny how I’ve been having hot flashes and incredible cold, chilled times. I just asked my mom yesterday, “am I going through menopause? ” her response was to go take my temp., mom has fibro too. Well when I took my temp, 102.9*!! I just looked at the thermometer smdh, especially because my Raynards keeps my normal temp at about 95.7*. You’re not alone my dear, not alone. Be blessed and have many spoons

    Reply
    • Julie says

      September 9, 2014 at 7:28 pm

      And then the question is do you bother going to a doctor or do you just assume it’s more of the sos.

      Reply
  2. Tammy says

    December 10, 2010 at 9:04 pm

    I was just saying the same thing yesterday about how do we know if we’re sick or is it just a “bad” day. Hope you feel better soon!

    Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

About Julie

Spoonie. Fibro Warrior. E-health advocate.

Julie Ryan was diagnosed with fibromyalgia in 2010 and endometriosis in 2012. She's lived with chronic migraine most of her life. In 2019 she was diagnosed with inter-cranial hypertension.

Julie has a degree in Psychology, and works as a freelance writer and marketer. Freelance work allows her to work when she can and not be tied to a desk or a schedule. Julie believes in living an inspired life despite chronic illness.

"I have chronic illness, it doesn't have me."

More about Julie

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it's like to live with invisible illness. Read More…

Disclaimer:

I am not a doctor. I do not claim to be a doctor. I do not play a doctor on TV or the internet. I simply share my experiences and what has worked for me. We are all different and before you try any new treatment, exercise, supplement, etc you should talk with your doctor (the real one, not the one on TV).

Common Tags

abdominal pain acceptance alternative therapies anxiety asking for help book review books brain fog cbd oil chronic fatigue chronic illness chronic pain communication dairy-free dealing with doctors decreasing pain decreasing stress depression diagnosis diet doctors documentary family feeling better flares food sensitivities gifts health holidays ibs interviews mental health oska pacing pain relief product review review self-compassion sensitivities sleep sleep aids stress sunday inspiration support travel

Copyright

All content copyright CountingMySpoons Any content reblogged from this site must adhere to the terms of © Copyright and TOS
That page states in part: "A brief excerpt of content that does not exceed 75 words may be quoted as long as a link is provided back to the source page on this blog and authorship is properly attributed."

Proudly Hosted By:

Wordpress Hosting Done Right

Proud To Be Included

 

Chronic Illness Bloggers
 

Privacy Policy

Counting My Spoons respects your privacy. Your information will never be provided to any third party unless you provide explicit permission to do so (something I'm not likely to ever ask you to do).

Read full privacy policy

Content Copyright © 2025 - Webz Plus Inc