So evidently what I’ve been referring to as muscle spams are actually muscle twitches. After doing a little research last night I realized that what the medical community refers to as muscle spasms are the same thing as cramps. I thought they were two different things.
I do occasionally get muscle spams (aka cramps) but it’s pretty rare since I upped my Magnesium intake. However, the twitching has continued. It’s still primarily on my left side, my entire left side, but mostly in my arm, neck and shoulder.
What I read online describes muscle twitches as:
A muscle twitch or fasciculation is uncontrolled fine movement of a small segment of a larger muscle that can be seen under the skin.
Here’s the problem. What I have is not a small segment of a muscle, but seems to be the entire muscle (at times). Sometimes you can see it under the skin, but most of the time I just feel it. In a way it feels as if my muscle or nerve is a rubber-band stretched as far as it can go, and then someone pulls on it. I get that initial “ding” of the rubber-band going back followed by the reverb down the muscle or nerve. Sometimes it makes my arm or leg jerk or shake.
Whatever the case it’s tiring. In the last few weeks it’s been so bad that I could barely hold a book in my hand and read it without it just becoming downright painful. Having any weight in my left hand seems to increase the “twitches”, even a weight as small as my Ipod.
Muscle relaxers help to calm things down at night, but I can’t take them during the day or they knock me out. Not that that would really be a problem lately since for the last few weeks I’ve barely done anything during the day except watch tv or listen to music, because various symptoms have been that bad.
These twitches or spasms, or whatever they are, have been bad enough lately to make me feel like there has to be something else here. It’s getting worse. Is this really Fibro? Yet, every other test has come back clean. It’s frustrating and I feel like I’m wasting away, mind and body. It’s funny, the pain I could deal with and work through, it’s all the other little things that put me to a stop. It’s the fatigue, the twitching, the feeling almost paralyzed when I wake up in the morning.
I guess thinking about it, it all makes some sense. Fibro is a nerve disorder. My nerves are sending random signals out to my left side (for some reason) and those random signals cause twitches. Instead of just one random twitch like a normal person might have, my nerves are firing over and over again causing twitches at such a frequent rate and so scattered that you can’t really see it or feel it in just one place. Instead, it becomes like my entire side is twitching.
At least now I have the terminology correct and that will help me when I talk to my Dr again. When I told him I was having spasms he kept telling me to stretch. I couldn’t figure out why all the stretching I was doing and my “spasms” kept getting worse. Maybe he’ll have some new advice when I tell him it’s twitching.
Related Posts:
- Talking With Your Doctor About Pain
- The Chronic Pain Scale: Communicating Your Chronic Pain
- Fibromyalgia Nerve Pain – there might be more to it than you think.
- 3 Things that Affect Our Communication with Doctors
lovie Horton says
i just found out i have fibro.
Julie Ryan says
So sorry to hear that Lovie.
Rachel Runyan says
I know this is an older post, but I was wondering if they ever got your larger twitches stopped or figured out what they were. I’m having to go in patient at a hospital today for a couple days to make sure they are not part of my seizure disorder (neither I or the doctor think so). I’ve had them for at least as long as you. I’ve been diagnosed with Extreme Fibromyalgia plus many co-diagnosis that it would make your head spin. I can’t help but think that something has been missed.
Julie says
The twitches (at least for me) were just part of the Fibro. When it gets REALLY bad they are one of my worst symptoms. Gabapentin and a muscle relaxer (I take 8mg of tizanidine) seem to keep them in check. When I try to cut the Gabapentin I notice the twitches trying to return.
Also, physical therapy helped a lot with the twitches (mainly by way of kinesiology taping and massage). Check out this post for more on the taping: http://fibrokitty.blogspot.com/2010/06/muscle-spasms-taping.html
Missy Schranz says
I take Neurontin, a pretty hefty dose, too. 800mg three times a day. It does help, to a certain degree, especially for the “hot, electric” nerve pain. It hasn’t helped me with the twitches, though, I’m sorry to report. But you may be different! :0) I hope it works out for you. I’m praying for you!
Julie says
I went to the Dr today and he said the twitching is part of the nerve pain. He started me on Neurontin, so hopefully that will help.
Missy Schranz says
I have exactly the same thing! Except in my case, I will be sitting and typing and all of a sudden, my body will jerk. My WHOLE body! Or sometimes if I’m holding a fork or book or whatever, my hand will jerk for no reason whatsoever. I think it’s a fibro thing. I’ve heard it described enough from others with fibromyalgia. Whatever it derives from, I wish it would go back to hence it came from!!!!
Hope you feel better,
Missy
PS….stop in and visit my blog at:
http://missyschranz.blogspot.com