I got sick in May of 2001; I was diagnosed with Fibromyalgia in Sept of that same year. I was 36.
I’d developed excruciating low back pain that shot down the back of my right leg one morning while driving to work. Initially both my Dr and I thought I’d ruptured a disk. I’d been a nurse for 17 yrs and hoisting patients twice my size was a daily occurrence. A ruptured disk would have been a blessing. Prior to this I’d had random symptoms on and off since the early 80’s but never really thought that they were tied to something bigger.
Yes, I was working 12 hour shifts as a critical care nurse.
I was and still am married with 3 kids. My kids were 11, 9, and 4 yrs old, I was pretty busy.
My family has always been very supportive.
I really haven’t been back to work since that May morning in 2001. I went back one day about 6 weeks afterwards and just did office work but I didn’t last 4 hours.
The downtime that is required to maintain some degree of function. I don’t do pain meds anymore, so I’ve really got to incorporate balance into my life in order to stay upright. It can be extremely frustrating, even after all these years, knowing that I no longer function like the Energizer bunny.
Yes, I’ve got a few. ME/CFS…. This little gem adds to the exhaustion and brain fog that I’ve already got with Fibro. Piriformis Syndrome and Myofascial Pain Syndrome…I believe these two work hand in hand; exercise that helps my Fibro aggravates the MPS and Piriformis syndrome, Raynauds Syndrome, RLS/PLMD, TMJ, Eczema and Osteoarthritis. I’m sure I’ve forgotten a few but these come to mind at the present time.
I swear by my rice sock but pacing, balance, and learning to say no are really the key to successful living with Fibromyalgia and its co-conditions.
Gentle exercise daily and balance activity with rest periods.
I’ve been in this boat for a very long time, I’ve learned a few things and thought I could share what has worked for me as well as learn a few new tricks from others. When I first got sick there really wasn’t a big internet presence for people with Fibro, information was limited to a handful of articles, and I believe 2 online support groups. Times have changed and we now have a much bigger voice but there is still much work to be done. I suppose I wanted to be part of that.
Allowing a physical therapist to put me in traction…once….this set me back months.
I’m stronger and more resilient than I ever knew was possible.